Janet is Senior Lecturer in Special Education at the University of East London, teaching on both undergraduate and postgraduate programmes. In 2001 she co-founded the charity Action Duchenne with her partner Nick Catlin after their son Saul was diagnosed with DMD. From 2008 – 2011 Janet ran the lottery-funded ‘Include Duchenne’ Project which worked with over 60 children with DMD and their schools and families across the UK to improve reading and learning skills and which won the 2011 National Lottery Award for Education. 

From 2011-2016 Janet co-managed the lottery-funded Takin’ Charge Transition to Adulthood project which worked with 80 young people with DMD aged 14 – 19 years and their families, supporting teenagers with DMD to be aspirational about their future. Through the Community Interest Company Decipha, Janet has worked with children with a range of learning and behaviour difficulties and led a Department for Education funded Leadership Programme for young adults with Life- Limiting impairments. 

Janet is currently involved in research that is exploring the experience of young people with life limiting impairments and their views on new SEND reforms in a time of austerity. She has edited the book A Guide to Duchenne Muscular Dystrophy : Information and Advice for Teachers and Parents.