About Us Patient Advisory Board Pauline Clark Pauline worked for several years as a laboratory technician before starting a family. Pauline’s youngest son Josh was diagnosed with Duchenne when he was 5. Josh, now 18, has an older brother Ryan, and older twin sisters Ellie and Lauren. Since Josh’s diagnosis Pauline has thrown herself into numerous fundraising activities, and worked in Advocacy and Fundraising. Pauline is currently studying a BA in English and Creative Writing, and is part owner and Director of an access information website due to launch next year. Pauline has a particular interest in trials for non-ambulant participants, and for adults living with Duchenne.