What We Do About Us Patient Advisory Board Rachel & Gareth Halpin Rachel and Gareth's son, Harry, was just two and a half years old when he was diagnosed with Duchenne muscular dystrophy. At that time, they were expecting their second child. Luckily they had a healthy girl - Grace. Rachel decided not to return to her job in the Housing industry and to be a full-time mother. Gareth continues to run his own nightwear business. Gareth has taken part in the Duchenne Dash twice, and together, they continue to fundraise for Duchenne UK, in the hope that one day there will be a cure.