Becky Burnett is mother to Tom, who has Duchenne muscular dystrophy, and Amy. She graduated from Oxford University and worked in London and Hampshire as a lawyer specialising in medical negligence. Shortly after Tom was born in 2007, she and her husband Gary, spent 3 years self-building their dream home - Tom was diagnosed with Duchenne muscular dystrophy a few weeks after they had moved in. 

Tom has taken part in 3 clinical trials at Great Ormond Street Hospital, two for an experimental drug for Duchenne and one for a distraction device used when giving blood. Her experience during this time has left her in no doubt that the patient voice is not being listened to by the drug companies and she believes passionately that it should be the primary consideration at every step of drug research.