Your family, friends and non-medical professionals will probably not have heard of Duchenne muscular dystrophy and some people can be uncertain as to how to respond to this kind of news. Providing them with information about Duchenne and how it progresses will build an understanding that will be helpful to them and also for you and your child.

Other Children

 - How you talk to children, siblings, family members and friends, will depend on their age and level of understanding.

 - Describing how Duchenne progresses and what treatments will be given will be an ongoing process.

 - Encourage them to talk about how they feel and what their concerns might be.

 - Explain that your child may have this disability but they are also just like them and love to play, follow their hobbies and passions and be friends.


 - Explain the symptoms, progression and constraints that occur with Duchenne

 - Teaching support will need to adjust according to the age of your child

 - Adjustments will be needed within the physical environment, for example moving from class to class and to different subject areas and allowing extra time

 - Participating in school outings will need planning

 - Explaining to classmates to gain support and understanding

 - How to help your child deal with their feelings of what it’s like to be different

 - Request regular meetings to discuss any issues that may arise