Wednesday 22nd April 2020

This is the recording of the webinar we held on Tuesday 21st April at 12.30pm. We partnered with another rare disease charity, Metabolic Support UK, to host this webinar addressing an issue common to us both: how to psychologically manage in lockdown.

We spoke with leading clinical psychologists to share their top tips for helping parents, carers and children through lockdown.

Useful resources mentioned:

Please email us with any questions [email protected]

EXTRA WEBINAR THIS WEEK: Lots of you have asked us for advice on physiotherapy during lockdown. So we’re holding an EXTRA webinar THIS THURSDAY 23rd APRIL at 2pm on "Physiotherapy and exercise during lockdown"

Register here: https://zoom.us/webinar/register/WN_6J84QP-hQ_2_i0v7dvHMsw