Family and Friends Funds THANK YOU!

We know that the people who are most passionate about raising money to find treatments and a cure for Duchenne Muscular Dystrophy are those who live with it every day.

We would like to say a huge thank you to all our Family and Friends Funds. Our Family and Friends Funds provide vital support to Duchenne UK by fundraising for us and helping us to advocate to accelerate research. They share our ambition to fund the most promising research, no matter where it is in the world, and to do so with a vision to help bring that research out of the laboratory and into the clinic where it can help patients.

Here is a selection of photos from just some of the fantastic fundraising our family funds have done over 2017.

Jacks Mission
Anna and Mark Clarke put on a Dinner to raise money for Jacks Mission.

Lygo family fund
Ran the Duchenne dip ‘Swimming for a cure’.

Team Felix
Put on Fefest, a fantastic summer festival!

Help Harry
Thank you to Gareth Halpin who took part in the Duchenne Dash 2017!

Chasing Connors Cure
The Crawfords got a great team together for the Duchenne Dash 2017!

For Felix
Ali took part in the Dash Max (cycled London to Monaco!) and Robyn took part in the 2017 Duchenne UK Triathlon.

Team Dex
Have done a variety of fundraising from 10k runs to a Halloween fundraiser!

Latest

Opportunity for adults with DMD to take part in research

Researchers have developed a human-robot interface for assisted reaching and grasping.
Winner of #DreamWheelchair competition announced

We teamed up with Whizz-kidz and asked wheelchair users to draw or write about their dream wheelchair. The competition is part our Wheels of Change project.
Helping muscle regeneration with repurposed medicines

Duchenne UK is awarding a grant of £199,245 to the University of Geneva to investigate the potential of repurposed compounds to regenerate muscle and prevent fibrosis.
Investigating the benefits of Vitamin B3 (Nicotinamide Riboside)

We grant £73,500 to Leiden University to test whether Vitamin B3 can improve regeneration of muscle and help retain muscle tissue.

Winner of #DreamWheelchair competition announced

We teamed up with Whizz-kidz and asked wheelchair users to draw or write about their dream wheelchair. The competition is part our Wheels of Change project.
Helping muscle regeneration with repurposed medicines

Duchenne UK is awarding a grant of £199,245 to the University of Geneva to investigate the potential of repurposed compounds to regenerate muscle and prevent fibrosis.
Investigating the benefits of Vitamin B3 (Nicotinamide Riboside)

We grant £73,500 to Leiden University to test whether Vitamin B3 can improve regeneration of muscle and help retain muscle tissue.
Tackling fibrosis and muscle regeneration

Duchenne UK grants £235,200 to AGADA Biosciences’ to test the impact of two already approved drugs on protecting muscle in DMD, Tofacitinib and Ruxolitinib.
Creating new muscle by using stem cells

The DMD INSPIRE Major Grant of $945,654 (Approx. £780,000) will support the University of Minnesota’s pioneering work on regenerating muscle in DMD patients with stem cells.
Duchenne UK invests £1,25 million into new research of treatments for DMD

Four projects will receive funding. They explore ways to build new muscle, tackle fibrosis and bring treatments to patients as quickly as possible.
Duchenne UK grants £63,618 to test whether TEMPOL can help reduce muscle cell damage and inflammation in DMD

Duchenne UK is investing in the development of a new anti-oxidant drug.
ICER Update

This week, Fleur Chandler, member of our Patient Advisory Board and chair of Project HERCULES, attended a meeting in Boston, hosted by Institute for Clinical and Economic Review (ICER) to review medicines for their cost effectiveness.
Duchenne UK’s £80,000 grant to Decipha provides vital, free educational support for children and young adults with Duchenne Muscular Dystrophy

Our grant to Decipha has directly helped 117 families since 2017
The Duchenne Dash 2019 by Ben Monro-Davies

Ben Monro-Davies, Editor of Sky News Sunrise, has taken part in the Dash every year since it began: Back at work after Dash number 7 he reflects on the Dash.