Family and Friends Funds THANK YOU!

We know that the people who are most passionate about raising money to find treatments and a cure for Duchenne Muscular Dystrophy are those who live with it every day.

We would like to say a huge thank you to all our Family and Friends Funds. Our Family and Friends Funds provide vital support to Duchenne UK by fundraising for us and helping us to advocate to accelerate research. They share our ambition to fund the most promising research, no matter where it is in the world, and to do so with a vision to help bring that research out of the laboratory and into the clinic where it can help patients.

Here is a selection of photos from just some of the fantastic fundraising our family funds have done over 2017.

Jacks Mission
Anna and Mark Clarke put on a Dinner to raise money for Jacks Mission.

Lygo family fund
Ran the Duchenne dip ‘Swimming for a cure’.

Team Felix
Put on Fefest, a fantastic summer festival!

Help Harry
Thank you to Gareth Halpin who took part in the Duchenne Dash 2017!

Chasing Connors Cure
The Crawfords got a great team together for the Duchenne Dash 2017!

For Felix
Ali took part in the Dash Max (cycled London to Monaco!) and Robyn took part in the 2017 Duchenne UK Triathlon.

Team Dex
Have done a variety of fundraising from 10k runs to a Halloween fundraiser!

Latest

Love for Leon

Leon is a strong and caring boy, he lives in Hampshire with his mum and dad (James and Louise) and his brothers Josh and Seb.
Tamoxifen clinical trial, co-funded by Duchenne UK, is fully recruited, results expected early next year

In 12 months, these patients will have completed their 48 weeks of treatment and results can be expected in Spring 2021.
Sara Smedley
Duchenne UK announces a new grant of £163,637 to help improve the success rate of clinical trials

This project aims to more accurately and efficiently predict whether medicines might work in humans

Duchenne UK announces a new grant of £163,637 to help improve the success rate of clinical trials

This project aims to more accurately and efficiently predict whether medicines might work in humans
Duchenne UK supports first study to examine Edasalonexent as a potential treatment for non-ambulant patients with DMD

This will be a pilot study in non-ambulatory patients to test it's benefits.
Impact Report 2019

We are pleased to share with you our Impact Report 2019. Thank you for helping us grow from a tiny patient organisation to a multi-million pound catalyser and funder of research.
Duchenne UK and the DMD Hub Gene Therapy Meeting: Summary Report

The DMD Hub team brought together 100 stakeholders to understand what more can be done to be bring gene therapy trials to the UK.
Treat-NMD Conference Summary

Last week, Dr David Bull, our Director of Research, attended the conference in Leiden. It's an important meeting for patient advocacy, DMD research and to meet with our many research partners.
Saracens and Duchenne UK to raise funds for DMD Hub at Evelina London Children's Hospital

Money raised will fund clinical trials, doctors’ posts and new research into finding a cure for DMD
DMD Hub Impact Report

We are very pleased to be able to share with you our first ever DMD Hub Impact Report. The DMD Hub is a network of hospitals expanding clinical trial capacity in the UK for Duchenne muscular dystrophy.
Termination of funding of the Nutraceuticals Project with Reading University

The Nutraceutical project with Reading University has unfortunately been terminated due to practical and technical issues.
Gene Therapy Meeting: Patient Perspectives

At our gene therapy meeting Emily and Alex gave a speech about the importance of the patient perspective. 100+ representatives from NICE, the NHS, UK hospitals and pharma attended
DMD Hub Gene Therapy meeting

Our meeting, organised through the DMD Hub, brings together 100 partners from hospitals around the UK and the pharmaceutical industry to discuss bringing gene therapy trials to the UK.