November 2016

Fiona, Our Director of research and clinical development, attended the Partnerships in Clinical Trials conference in Vienna. 

Here she is participating in a panel discussion on how patients are shaping research for rare disease:  

Tangible examples of how charities and patient organisations are setting the research agenda were given. These included funding clinical trials and setting up site networks to accelerate recruitment and save time overall. The vital role that  patients play in the development of meaningful outcome measures and endpoints was highlighted.  Also discussed were examples of how patient groups are leading research into re-purposing drugs for rare diseases, an area neglected by commercial companies. An innovative idea for the future funding of trials for re-purposed drugs via a social impact bond was introduced.