About Us

Duchenne UK is a lean, ambitious and highly focused charity with a clear vision: to fund and accelerate treatments and a cure for Duchenne muscular dystrophy. The charity has been formed by the coming together of Joining Jack and Duchenne Children's Trust, the two biggest funders of research in the UK in the last three years. We are committed to continuing to drive momentum to deliver treatments to help this generation of those with DMD.

President & Patrons

HRH The Duchess of CornwallRead more

Meet The Team

Our co-founders Alex Johnson and Emily Crossley met after their sons were diagnosed with Duchenne muscular dystrophy. They both set up charities, Alex with Joining Jack, Emily with the Duchenne Children’s Trust.Read more

Patient Advisory Board

Patient and parent involvement is at the heart of Duchenne UKRead more

Scientific Advisory Board

Our Scientific Advisory Board includes some of the world's leading experts in Duchenne muscular dystrophy.Read more

Our Impact

How we are making a differenceRead more

Joining Jack

Joining Jack is a founding partner of Duchenne UKRead more

Alex's Wish

Alex’s Wish is a partner charity with Duchenne UKRead more

World's Strongest Boys

Support Our World's Strongest Boys CampaignRead more

Latest

Archie's March

In our darkest moments we chose to not let Duchenne define either Archie or our family but instead to start fund raising and join the fight to end it.

Patient Perspectives in DMD

We are doing some interviews on how Duchenne muscular dystrophy affects people and their lives, and, in particular, what aspects are most important in determining a good quality of life in people with DMD. The study will involve taking part in an interview with a researcher from the University of Sheffield.

Archies March

In our darkest moments we chose to not let Duchenne define either Archie or our family but instead to start fund raising and join the fight to end it. With hope and huge, huge thanks, Beccy, Alex, Archie and Freddie

Cheshire Dash raises over £112,000 for Duchenne UK

The Cheshire Dash took place in July, it is a 2-day challenge where 90 cyclist rode 200 miles across the beautiful Cheshire countryside AND raised over £112,000 for Duchenne UK. The event was organised by the Cheshire Flyers on behalf of Transforming Lives Charity. The Duchenne Dash spin off event will help us End Duchenne.

Duchenne Dash 2019

London to Paris in 24 hours, by bike! Please contact us to register interest for 2019 [email protected]

Meet The Team

Understand Duchenne

Find out more about DMD and how we can help you

The Impact Of Brexit On Rare Diseases

Please read and share our paper on the impact of Brexit on rare diseases.

Welcome To Duchenne UK

Duchenne Children's Trust and Joining Jack have joined forces to create Duchenne UK, dedicated to funding and accelerating treatments for Duchenne Muscular Dystrophy.

Girls living with Duchenne

Duchenne affects approximately 1 in every 3,500 boys that are born but only around 1 in every 50 million girls. It may be rare, but it does happen. We have been speaking to Feriel, a 26 year old woman living with Duchenne muscular dystrophy. She has written us a short blog about her experiences with Duchenne from diagnosis to now.