Duchenne UK's main focus will always be to fund and accelerate treatments and a cure for Duchenne muscular dystrophy. Duchenne UK also recognises the importance of community care and support, we understand the daily struggles families face.
Duchenne UK therefore collaborates with various charities and patient organisations to ensure that we can provide help to families within the Duchenne community.
We collaborate with other charities in the UK and globally, to advance DMD research. Our co-founder, Alex Johnson, sits on the board of UPPMD, United Parent Project Muscular Dystrophy, the global umbrella group for DMD patient organisations.
Duchenne UK co-funds a number of clinical posts here in the UK with other DMD patient organisations and the Great Ormond Street Charity. Find out more here.
A new app allows those with Duchenne to carry their medical information with them on their phone or tablet.Read more
Campaign for treatments for Adults with DMDRead more
Please join us at our free Patient Information DayRead more
Your RoadMap for LifeRead more
Duchenne UK joins forces with Decipha, an organisation dedicated to providing advice and support to young people and their families with complex education and medical special needs.Read more