Duchenne UK's main focus will always be to fund and accelerate treatments and a cure for Duchenne muscular dystrophy. Duchenne UK also recognises the importance of community care and support, we understand the daily struggles families face.
Duchenne UK therefore collaborates with various charities and patient organisations to ensure that we can provide help to families within the Duchenne community.
We collaborate with other charities in the UK and globally, to advance DMD research. Our co-founder, Alex Johnson, sits on the board of The World Duchenne Organisation (WDO), the global umbrella group for DMD patient organisations.
Duchenne UK co-funds a number of clinical posts here in the UK with other DMD patient organisations and the Great Ormond Street Charity. Find out more here.
Duchenne UK are here to offer support and advice. Please get in touch: [email protected]
Please join us at our free Patient Information Day 2nd October 2021. Read more
The new Care Considerations for Duchenne have been published Read more
Your RoadMap for Life Read more
What to do in an emergency Read more
Decipha work face to face with families and offer a range of assessments and valuable support to boys with DMD and their families. Read more
Campaign for treatments for Adults with DMD Read more
We partnered with Whizz-Kidz and the University of Edinburgh to win £1 million from the People’s Postcode Lottery Dream Fund to develop a dream chair for wheelchair users. Read this update from WhizzKidz Read more
We are offering families affected by DMD FREE copies of Janet's book. Get in touch to request one. Read more
Jon Hastie shares DMD Pathfinders work to promote research and treatments for adults living with DMD. Read more