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    1. What We Do
    2. Community Engagement

    Community Engagement and Support

    Duchenne UK's main focus will always be to fund and accelerate treatments and a cure for Duchenne muscular dystrophy. Duchenne UK also recognises the importance of community care and support, we understand the daily struggles families face.

    Duchenne UK therefore collaborates with various charities and patient organisations to ensure that we can provide help to families within the Duchenne community.

    We collaborate with other charities in the UK and globally, to advance DMD research. Our co-founder, Alex Johnson, sits on the board of The World Duchenne Organisation (WDO), the global umbrella group for DMD patient organisations. 

    Duchenne UK co-funds a number of clinical posts here in the UK with other DMD patient organisations and the Great Ormond Street Charity. Find out more here.

    Duchenne UK are here to offer support and advice. Please get in touch: [email protected]

    Updated Care Consideration Guidelines and Family Guide for Duchenne

    Updated Care Consideration Guidelines and Family Guide for Duchenne

    The new Care Considerations for Duchenne have been published Read more

    Published: 1st February, 2018

    Updated: 14th October, 2020

    Author: Nick Crossley

    Attend our FREE Information Days

    Attend our FREE Information Days

    Please join us at our free Patient Information Day Read more

    Published: 27th July, 2017

    Updated: 13th October, 2020

    Author: Nick Crossley

    Comments: 1

    Decipha - Education support

    Decipha - Education support

    Your RoadMap for Life Read more

    Published: 25th September, 2017

    Updated: 2nd April, 2020

    Author: Nick Crossley

    Emergency Care

    Emergency Care

    What to do in an emergency Read more

    Published: 15th March, 2016

    Updated: 24th March, 2020

    Author: Nick Crossley

    Decipha: patient and parent stories

    Decipha: patient and parent stories

    Decipha work face to face with families and offer a range of assessments and valuable support to boys with DMD and their families. Read more

    Published: 8th December, 2017

    Updated: 19th July, 2019

    Author: Nick Crossley

    DMD Pathfinders

    DMD Pathfinders

    Campaign for treatments for Adults with DMD Read more

    Published: 5th April, 2017

    Updated: 9th April, 2019

    Author: Nick Crossley

    Wheels of Change: BUILDING THE DREAM CHAIR

    Wheels of Change: BUILDING THE DREAM CHAIR

    We partnered with Whizz-Kidz and the University of Edinburgh to win £1 million from the People’s Postcode Lottery Dream Fund to develop a dream chair for wheelchair users. Read this update from WhizzKidz Read more

    Published: 14th December, 2018

    Author: Nick Crossley

    Duchenne UK are offering FREE copies of Janet Hoskin's DMD guide

    Duchenne UK are offering FREE copies of Janet Hoskin's DMD guide

    We are offering families affected by DMD FREE copies of Janet's book. Get in touch to request one. Read more

    Published: 25th July, 2018

    Updated: 14th August, 2018

    Author: Nick Crossley

    DMD Pathfinders: pushing for DMD treatments for all ages

    DMD Pathfinders: pushing for DMD treatments for all ages

    Jon Hastie shares DMD Pathfinders work to promote research and treatments for adults living with DMD. Read more

    Published: 25th July, 2018

    Author: Nick Crossley

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    Showing 10 of 9

    DMD Hub

    DMD Hub

    Expanding Clinical trial capacity Read more

    Published: 1st March, 2015

    Updated: 26th June, 2019

    Author: Nick Crossley

    Attend our FREE Information Days

    Attend our FREE Information Days

    Please join us at our free Patient Information Day Read more

    Published: 27th July, 2017

    Updated: 13th October, 2020

    Author: Nick Crossley

    Comments: 1

    Impact Report 2020

    Impact Report 2020

    Despite the challenges of 2020, Duchenne UK has achieved much and we hope you find the impact report that we are releasing today, uplifting. Thank you for your support and we wish you a safe and bright 2021. Read more

    Published: 23rd December, 2020

    Updated: 27th January, 2021

    Author: Nick Crossley

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    Registered Charity No. 1147094. © 2020 Duchenne UK. All rights reserved.
    A non profit company limited by guarantee. Registered in England No. 8030768

    Our mailing address is: Duchenne UK, Unit G20, Shepherd’s Building, Charecroft Way, Hammersmith, W14 0EE


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