Corporate support

The support we receive from businesses is an invaluable part of our fundraising.

There are many ways we can work together with companies, your workplace could make us their charity of the year or hold a fundraising event for us.

We have corporate team places on many of our events such a our World's Strongest Boys Triathlon.

If you would like to discuss how we could work with your business please get in touch.

Foodbuy and Compass

Duchenne UK are Compass and Foodbuy's charity of the year. They have a team in the Duchenne Dash 2017.Read more

London Stone

London Stone are helping to raise desperately needed funds for Duchenne UK to support Felix and other young boys with DMD.Read more

Latest

Pfizer Doses First Patient Using Investigational Mini-Dystrophin Gene Therapy for the Treatment of Duchenne Muscular Dystrophy

We are excited to share the news with the Duchenne community highlighting an important advancement in the Phase 1b, Multicenter, Open-label, Single Ascending Dose Study.

Soy Products Study: Your Questions Answered

Duchenne UK recently posted a publication by Professor Steve Winder investigating a nutraceutical soy project Haelan 951. Following the publication, Duchenne UK have collated some of the questions from the Duchenne community and working with Steve Winder we have answered them.

VISION-DMD Update:

VISION-DMD is an EC funded project undertaking Phase 2 clinical studies on vamorolone, a new treatment for DMD. Vamorolone (also known as VBP15) is a dissociative steroid designed to have the efficacy of a steroid, without the severe associated side effects. The first Phase 2b study site is expected to open for recruitment in April 2018

An update on soy product research funded by Duchenne UK

In August 2016 Duchenne UK commissioned Professor Steve Winder at The University of Sheffield to investigate a nutraceutical soy product called Haelan 951, as a treatment for Duchenne muscular dystrophy. Results of the study published today in PLOS Currents.

Meet The Team

Our co-founders Alex Johnson and Emily Crossley met after their sons were diagnosed with Duchenne muscular dystrophy. They both set up charities, Alex with Joining Jack, Emily with the Duchenne Children’s Trust.

Duchenne Dash 2018

London to Paris in 24 hours, by bike! Please contact us to register interest for 2018 [email protected]

Understand Duchenne

Find out more about DMD and how we can help you

The Impact Of Brexit On Rare Diseases

Please read and share our paper on the impact of Brexit on rare diseases.

Welcome To Duchenne UK

Duchenne Children's Trust and Joining Jack have joined forces to create Duchenne UK, dedicated to funding and accelerating treatments for Duchenne Muscular Dystrophy.

How You Can Help

Join Us to End Duchenne

World's Strongest Boys

Help save the World's Strongest Boys

Duchenne Direct

Duchenne Direct is a monthly Direct Debit from you to Duchenne UK, that is spent DIRECTLY on research. 100% of your donations will be ring-fenced and will go directly into our exciting research projects. By becoming a Duchenne Direct supporter today, you can help us End Duchenne.

Diet

A healthy diet is vital for patients with DMD, especially foods high in Vitamin D and calcium

Patient Advisory Board

Patient and parent involvement is at the heart of Duchenne UK