Current Drugs For Treating Duchenne

Cardiac Care

The heart muscle weakens as Duchenne progresses but there are treatments that can help with this.Read more

Steroids

Steroids are an important treatment for DMD but they need to be carefully managed by your doctorRead more

Bone Care

Bone health is important for boys with Duchenne. Long term use of steroids can affect bone density and it's important for your doctors to monitor this.Read more

Latest

Duchenne UK awards £45,000 to Leiden University Medical Center to investigate if Exon-skipping can treat the brains of patients with DMD

We investigate whether exon skipping can help restore dystrophin in the brain.

Duchenne UK grants £86,460 to further understand the causes of heart disease in DMD

Duchenne UK has granted £86,460 to Dr John Bourke at Newcastle Hospital, to carry out a study of Arrhythmias to improve understanding of the causes of heart disease in DMD.

We recently awarded £273,648 to the University of Western Australia to investigate Taurine as a treatment for Duchenne muscular dystrophy. We have put together a short Q&A to explain why we are excited about this project and what it could mean for the Duchenne community.

Fibrosis Project Q&A

We recently announced £82,405 funding to investigate the development of a potential new test system for drugs that impact fibrosis in DMD. We have put together a short Q&A to explain why this project is so important and what it could bring to the Duchenne community.

Duchenne Dash 2019

London to Paris in 24 hours, by bike! Please contact us to register interest for 2019 [email protected]

Meet The Team

Our co-founders Alex Johnson and Emily Crossley met after their sons were diagnosed with Duchenne muscular dystrophy. They both set up charities, Alex with Joining Jack, Emily with the Duchenne Children’s Trust.

Girls living with Duchenne

Duchenne affects approximately 1 in every 3,500 boys that are born but only around 1 in every 50 million girls. It may be rare, but it does happen. We have been speaking to Feriel, a 26 year old woman living with Duchenne muscular dystrophy. She has written us a short blog about her experiences with Duchenne from diagnosis to now.