In the pieces below, patients and parents have written about different aspects of their experience with Duchenne muscular dystrophy. If you would like to share your experiences to help others, then please do contact us. The words below are directly from patients and parents and therefore do not necessarily represent the charity's views on any of the matters discussed.
Lisa Kuwahld - raising money & awareness, fighting for her son to enjoy the future with him.Read more
Becky Burnett - how we have worked hard to find ways to keep our son happy, socially included and resilient.Read more
Robyn Pete - the day we took a hit that reshaped our lives. We didn't see it coming.Read more
Luca's inspirational speech on living life to the fullRead more
Jon Hastie is 36 and lives with DuchenneRead more
Duchenne affects approximates 1 in every 3,500 boys that are born but only around 1 in every 50 million girls. It may be rare, but it does happen. We have been speaking to Feriel, a 26 year old woman living with Duchenne muscular dystrophy. She has written us a short blog about her experiences with Duchenne from diagnosis to now.Read more