Partner Charities

Words about how we like to work with other charities - better together etc.

Latest

Duchenne UK’s Project HERCULES Awarded Prestigious Rare Disease Award

Duchenne UK’s Project HERCULES has been awarded the 2019 EURORDIS Black Pearl Award for Patient Engagement.
Welcome To Duchenne UK

Duchenne Children's Trust and Joining Jack have joined forces to create Duchenne UK, dedicated to funding and accelerating treatments for Duchenne Muscular Dystrophy.
Duchenne UK grants £655,000 to Evox Therapeutics to investigate new ways of delivering gene therapy to patients

This project will look at whether it is possible to deliver the dystrophin gene using exosomes rather than a virus.
Action for Arvin

Our mission is to raise awareness and as much money as possible to fund research in order to find a cure for this cruel disease.

Most read

Duchenne Dash 2019

London to Paris in 24 hours, by bike! Please contact us to register interest for 2019 [email protected]
Meet The Team

Our co-founders Alex Johnson and Emily Crossley met after their sons were diagnosed with Duchenne muscular dystrophy. They both set up charities, Alex with Joining Jack, Emily with the Duchenne Children’s Trust.
Girls living with Duchenne

Duchenne affects approximately 1 in every 3,500 boys that are born but only around 1 in every 50 million girls. It may be rare, but it does happen. We have been speaking to Feriel, a 26 year old woman living with Duchenne muscular dystrophy. She has written us a short blog about her experiences with Duchenne from diagnosis to now.
Understand Duchenne

Find out more about DMD and how we can help you
Gene Therapy Overview

An exciting new gene-based therapy on the horizon
What Are The Stages Of Duchenne?
The Impact Of Brexit On Rare Diseases

Please read and share our paper on the impact of Brexit on rare diseases.
Welcome To Duchenne UK

Duchenne Children's Trust and Joining Jack have joined forces to create Duchenne UK, dedicated to funding and accelerating treatments for Duchenne Muscular Dystrophy.
How You Can Help

Join Us to End Duchenne
Diet

A healthy diet is vital for patients with DMD, especially foods high in Vitamin D and calcium

DMD Hub

Expanding Clinical trial capacity Read more

How You Can Help

Join Us to End Duchenne Read more

Our Impact

How we are making a difference Read more

OUR INFORMATION DAYS

Please join us at our free Patient Information Day Read more

Our Mission To End Duchenne

Duchenne UK has a clear vision; to fund and accelerate treatments and a cure for DMD Read more