Partner Charities

Words about how we like to work with other charities - better together etc.

Latest

Elinor George
DMD Family Folder Chapters To Download
Action for Zach

We have set up this Family Fund because we want to fight for our son’s life, and the lives of all others living with Duchenne.
Duchenne UK’s £80,000 grant to Decipha provides vital, free educational support for children and young adults with Duchenne Muscular Dystrophy

Our grant to Decipha has directly helped 117 families since 2017

Duchenne Dash 2019

London to Paris in 24 hours, by bike!
Girls living with Duchenne

Duchenne affects approximately 1 in every 3,500 boys that are born but only around 1 in every 50 million girls. It may be rare, but it does happen. We have been speaking to Feriel, a 26 year old woman living with Duchenne muscular dystrophy. She has written us a short blog about her experiences with Duchenne from diagnosis to now.
Meet The Team

Our co-founders Alex Johnson and Emily Crossley met after their sons were diagnosed with Duchenne muscular dystrophy. They both set up charities, Alex with Joining Jack, Emily with the Duchenne Children’s Trust.
Gene Therapy Overview

An exciting new gene-based therapy on the horizon
What Are The Stages Of Duchenne?
Understand Duchenne

Find out more about DMD and how we can help you
The Impact Of Brexit On Rare Diseases

Please read and share our paper on the impact of Brexit on rare diseases.
Diet

A healthy diet is vital for patients with DMD, especially foods high in Vitamin D and calcium
How You Can Help

Join Us to End Duchenne
Late Ambulatory

DMD Hub

Expanding Clinical trial capacity Read more

OUR INFORMATION DAYS

Please join us at our free Patient Information Day Read more

We are proud to share with you our first ever Impact Report, read about the very real impact we are having and the many things we have been working on over the past six years to end Duchenne. Read more

Our Mission To End Duchenne

Duchenne UK has a clear vision; to fund and accelerate treatments and a cure for DMD Read more