Partner Charities

Words about how we like to work with other charities - better together etc.

Latest

Duchenne UK announces £46,930 to fund the expansion of clinical trial capacity at Birmingham Heartlands Hospital

We are delighted that Birmingham Heartlands Hospital is joining the DMD Hub. We will fund consultant time which will be dedicated to supporting clinical trials, as well as funding physiotherapy equipment for clinical trials.
Duchenne UK attends the opening of new Clinical Research Facility at Leeds Children's Hospital and announces £108,324 of funding for research posts

Last Thursday, our co-founder Alex Johnson attended the opening of the Clinical Research Facility at Leeds Children's Hospital which has recently joined the DMD Hub.
Welcome To Duchenne UK

Duchenne Children's Trust and Joining Jack have joined forces to create Duchenne UK, dedicated to funding and accelerating treatments for Duchenne Muscular Dystrophy.
DUCHENNE UK LAUNCHES THE DMD HUB WEBSITE: DMDHUB.ORG

Duchenne UK is pleased to announce the launch of the DMD Hub website, dmdhub.org, the go-to website for clinical trial information for DMD). The mission of the Hub is to ensure that all patients with DMD, including children and adults, have access to clinical research opportunities.

Duchenne Dash 2018

London to Paris in 24 hours, by bike! Please contact us to register interest for 2018 [email protected]
Meet The Team

Our co-founders Alex Johnson and Emily Crossley met after their sons were diagnosed with Duchenne muscular dystrophy. They both set up charities, Alex with Joining Jack, Emily with the Duchenne Children’s Trust.
Understand Duchenne

Find out more about DMD and how we can help you
The Impact Of Brexit On Rare Diseases

Please read and share our paper on the impact of Brexit on rare diseases.
Welcome To Duchenne UK

Duchenne Children's Trust and Joining Jack have joined forces to create Duchenne UK, dedicated to funding and accelerating treatments for Duchenne Muscular Dystrophy.
How You Can Help

Join Us to End Duchenne
What Are The Stages Of Duchenne?
Diet

A healthy diet is vital for patients with DMD, especially foods high in Vitamin D and calcium
Girls living with Duchenne

Duchenne affects approximately 1 in every 3,500 boys that are born but only around 1 in every 50 million girls. It may be rare, but it does happen. We have been speaking to Feriel, a 26 year old woman living with Duchenne muscular dystrophy. She has written us a short blog about her experiences with Duchenne from diagnosis to now.
World's Strongest Boys

Help save the World's Strongest Boys