Duchenne UK | Events

Skydive for the World's Strongest Boys

You can Skydive at many locations around the UK on ANY DATE that suits you! Read more

Duchenne Dash 2018

London to Paris in 24 hours, by bike! Please contact us to register interest for 2018 [email protected]Read more

Cheshire Dash

200 mile bike ride through the Cheshire Countryside 7-8th July 2018Read more

Wigan Bike Ride

Wigan Bike Ride will take place on Sunday, July 22nd, 2018. The day will feature a 50-mile main ride and a 5-mile family ride with both starting and finishing in Mesnes Park.Read more

Touch Rugby Tournament

The iconic Allianz Park, home of Saracens, will play host to the Duchenne UK Touch Rugby Tournament on 26th July 2018.Read more

Prudential Ride London-Surrey 100

Prudential Ride London-Surrey 100 is a cycling challenge like no other through London and SurreyRead more

Wigan 10k and Family Mile

The sensational 6th Wigan 10k will take place once again in September 2018! The 10k route starts and finishes on Market Street in Wigan town centre.Read more

Vélo South

Vélo South is a 100-mile cycling event through the West Sussex countryside, starting at the world famous Goodwood Motor Racing Circuit.Read more

BUILDING RESILIENCE FOR THE MODERN AGE

This event will provide an outstanding learning experience for leaders and high achievers who recognise these demandsRead more

Royal Parks Half 2018

The Royal Parks Half is a 13.1 mile run through four of London's world-famous Royal Parks- Hyde Park, The Green Park, St James's Park and Kensington Gardens. Read more

London Marathon 2019

Support our runners in the London Marathon 2018Read more

Latest

Team 3 Peaks for Project GO raise over £10,000 for Duchenne UK

Earlier this month, a team of 9 wonderful supporters embarked on the National 3 Peaks Challenge: climbing Ben Nevis, Scafell Pike and Snowdon within 24 hours to raise money for Project GO and Duchenne UK. Project GO have recently joined Duchenne UK as a family fund to raise awareness and vital funds to END DUCHENNE.

Duchenne UK commits a further £60,000 to investigate soy products as a potential new treatment approach for DMD

Duchenne UK and Joining Jack have granted Professor Steve Winder a further £60,000 to continue to investigate the use of soy products as a treatment for DMD. We have now invested £135,000 towards Professor Winder’s investigation.

Patient Group Consultative Forum at the MHRA covered the Early Access to Medicines Scheme and Brexit

Last week we attended a Patient Group Consultative Forum (PCGF) at the Medicines and Healthcare Products Regulatory Agency (MHRA). The meeting covered topics including the early access to medicines scheme (EAMS) and Brexit. Read our summary of the meeting.

PPMD Conference Update: Blog 2: Care Considerations

In this second blog, we focus on Care Considerations for DMD. Alex Johnson, our co-founder, took the following notes at various sessions at PPMD’s annual conference. We are working with other patient organisations to create the UK family friendly guide to understand the new and updated advice on how to care for your child.

Duchenne Dash 2018

London to Paris in 24 hours, by bike! Please contact us to register interest for 2018 [email protected]

Meet The Team

Our co-founders Alex Johnson and Emily Crossley met after their sons were diagnosed with Duchenne muscular dystrophy. They both set up charities, Alex with Joining Jack, Emily with the Duchenne Children’s Trust.

Understand Duchenne

Find out more about DMD and how we can help you

The Impact Of Brexit On Rare Diseases

Please read and share our paper on the impact of Brexit on rare diseases.

Welcome To Duchenne UK

Duchenne Children's Trust and Joining Jack have joined forces to create Duchenne UK, dedicated to funding and accelerating treatments for Duchenne Muscular Dystrophy.

How You Can Help

Join Us to End Duchenne

Girls living with Duchenne

Duchenne affects approximately 1 in every 3,500 boys that are born but only around 1 in every 50 million girls. It may be rare, but it does happen. We have been speaking to Feriel, a 26 year old woman living with Duchenne muscular dystrophy. She has written us a short blog about her experiences with Duchenne from diagnosis to now.