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    1. What We Do
    2. About Us
    3. President & Patrons

    President & Patrons

    HRH The Duchess of Cornwall - President

    HRH The Duchess of Cornwall - President

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    As President, The Duchess of Cornwall works to support children and young adults with life-limiting conditions.

    The Duchess supports The Charity's efforts to research treatments and find a cure for Duchenne muscular dystrophy, a devastating disease for which there is currently no cure.

    Published: 20th August, 2017

    Updated: 7th January, 2019

    Author: Nick Crossley

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    Jonathan Whitworth

    Jonathan Whitworth

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    Jonathan Whitworth, Managing Director of DSales (UK) Ltd, is a passionate supporter of Joining Jack and Duchenne UK, having made the cause his company’s corporate charity and has personally taken part in a number of Joining Jack events.

    “Having become aware of Joining Jack after meeting Andy at a charity fund raiser, I could not imagine a more worthy cause for our company to support. Jack’s plight and that of other boys with this crippling condition, could not fail to move the hardest of hearts. As a family man myself with young children, two of whom are type one diabetic, I can fully sympathise with Jack’s parents and their efforts to find a cure. I have got to know Andy and Alex very well over the last few years and don’t know anyone who works as hard for a cause as they do. I hope as many people as possible can help raise awareness and help end the terrible suffering that DMD causes.”

    Published: 21st August, 2017

    Author: Nick Crossley

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    Owen Farrell

    Owen Farrell

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    Owen Farrell is a prolific Saracens and England fly half. He has been part of helping promote awareness of DMD since the start of Jack Johnson's diagnosis.

    "My dad and Jack’s dad played together at Wigan and our families are very close," says Owen. "The charity has been a huge part of our family’s lives. Everyone who donates or who tells their friends and they then go on to spread awareness or raise money, then they are helping. If I can help spread awareness by doing the salute when I kick a goal to do this, it’s the least I can do."

    Published: 21st August, 2017

    Author: Nick Crossley

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    Andy Farrell, OBE

    Andy Farrell, OBE

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    Andy Farrell is the former Wigan and Great Britain captain, England rugby union coach and current assistant Ireland coach. "I feel honoured to be an Ambassador for Duchenne UK; a charity set up to help raise much-needed awareness of the fatal disease Duchenne muscular dystrophy".

    "When Andy Johnson (of Joining Jack) asked me to help the first thing that came to mind was my own two sons, as this mainly affects boys, and if anything was ever to happen to them I would hope and pray that I would also get support from friends. AJ has been a great friend since we started to play rugby together and to help him with this charity is a great privilege."

    Published: 21st August, 2017

    Author: Nick Crossley

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    Kris Radlinski, MBE

    Kris Radlinski, MBE

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    Kris Radlinski is a former Wigan and Great Britain rugby leage star and current Rugby General Manager.

    "Some people wander through life searching for answers as to where they fit into it and what's it all about. Andy and Alex's life has been simplified in some ways, as their path has been made very clear. They need to make Jack's and James's life happy and create memories. It's our job to ensure they have the opportunity to do this by helping them in whatever way we can. So I urge you to join me in working with Duchenne UK."

    Published: 21st August, 2017

    Author: Nick Crossley

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    Peter Serafinowicz

    Peter Serafinowicz

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    Peter Serafinowicz is an actor, comedian, writer, composer, voice artist, and director. He has appeared in film (Phantom Menace), on television (Spaced, Peter Serafinowicz Show) and on the radio since the early 90's. His first book, A Billion Jokes (Volume One) was published in 2012.

    Published: 21st August, 2017

    Author: Nick Crossley

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    Sarah Alexander

    Sarah Alexander

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    Sarah Alexander is an actress, known for her roles in British comedy series such as Armstrong and Miller, Smack the Pony, Coupling, The Worst Week of My Life, Jonathan Creek, Me & Mrs Jones and Green Wing.

    Published: 21st August, 2017

    Author: Nick Crossley

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    Sara Parker Bowles

    Sara Parker Bowles

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    Sara Parker Bowles writes for Harpers Bazaar. She previously worked at Vogue before moving to Harpers Bazaar.

    Published: 21st August, 2017

    Author: Nick Crossley

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    Ben Levine

    Ben Levine

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    Having worked at Goldman Sachs and UBS Ben Levine then co-founded LMR Partners in 2009, a London based boutique asset management business. Ben graduated from Cambridge in Economics in 1996 and went on complete his MSc in Econometrics and Mathematical Economics at the LSE.

    He lives in London with his wife Miranda and three young children.

    Published: 21st August, 2017

    Author: Nick Crossley

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    Mary Nightingale

    Mary Nightingale

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    Mary Nightingale is one of the main anchors of the ITN Evening news. Her career began in business journalism and she has also presented Wish You Were Here and many other popular programmes.

    Find out more at http://marynightingale.tv

    Published: 21st August, 2017

    Author: Nick Crossley

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    Alex Bilmes

    Alex Bilmes

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    Alex Bilmes is the Editor of British Esquire.

    Formerly Features Director of British GQ and Contributing Editor to British Vogue, Bilmes is an award-winning journalist and has written for numerous magazines and newspapers including The Spectator, The Observer, The Times, The Sunday Times and The Daily Telegraph.

    Published: 21st August, 2017

    Author: Nick Crossley

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    Peter & Laura Williams

    Peter & Laura Williams

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    Peter Wiilams is the Founder & CEO of UK clothing brand Jack Wills, a global brand trading from c.100 company owned stores in Europe, North America and Asia, with franchises across the Middle East. Peter is also a major support of Malaria No More UK.

    Laura Williams is a jewellery designer.  

    Published: 21st August, 2017

    Author: Nick Crossley

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    Krishnan Guru-Murthy

    Krishnan Guru-Murthy

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    Krishnan Guru-Murthy is one of the main anchors of Channel 4 News.

    His TV career began at 18 – and he has presented, reported and produced a number of programmes from Newsround to Newsnight.

    In 2013, Krishnan arranged for a small group of friends to cycle from London to Paris on the first ever Duchenne Dash. It has grown to become Duchenne UK’s biggest and most challenging event of the year!

    Published: 21st August, 2017

    Updated: 14th June, 2019

    Author: Nick Crossley

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    Professor Lord Smith of Clifton

    Professor Lord Smith of Clifton

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    Professor Lord Smith of Clifton sits on the All Party Parlimentary Committee for Muscular dystrophy.

    A professor of political science, he was knighted for services to Education in 1996 and became a Liberal Democrat working peer in 1997. He was Vice Chancellor of the University of Ulster from 1991 to 1999 and chairman of the Joseph Rowntree Reform Trust Ltd from 1987 to 1999.

    Published: 21st August, 2017

    Author: Nick Crossley

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    Clare Runacres

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    Clare Runacres’ voice is known to millions of BBC Radio 2 and BBC 6 Music listeners, where she reads the news.  She is a journalist who has worked in broadcasting for more than 20 years covering stories from the Iraq war to the London Olympics, and has even read the Shipping Forecast on Radio 4. She provides voluntary support for the Duchenne UK communications team. Clare has been a committed member of the Duchenne Dash support staff for many years. In 2017 she took part in the ride and wrote a blog about her experiences.

    Published: 20th September, 2018

    Author: Nick Crossley

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    Showing 10 of 15

    DMD Hub

    DMD Hub

    Expanding Clinical trial capacity Read more

    Published: 1st March, 2015

    Updated: 26th June, 2019

    Author: Nick Crossley

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    • Accelerating Drug Development
    Attend our FREE Information Days

    Attend our FREE Information Days

    Please join us at our free Patient Information Day Read more

    Published: 27th July, 2017

    Updated: 13th October, 2020

    Author: Nick Crossley

    Comments: 1

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    • Community Engagement and Support
    Impact Report 2020

    Impact Report 2020

    Despite the challenges of 2020, Duchenne UK has achieved much and we hope you find the impact report that we are releasing today, uplifting. Thank you for your support and we wish you a safe and bright 2021. Read more

    Published: 23rd December, 2020

    Updated: 27th January, 2021

    Author: Nick Crossley

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