The Duchenne Dash 2019 by Ben Monro-Davies

Ben Monro-Davies, Editor of Sky News Sunrise, has taken part in the Dash every year since it began: Back at work after Dash number 7 he reflects on the Dash. Read more

Duchenne UK grants £130,173 to Royal Manchester Children's Hospital to join the groundbreaking DMD Hub

This will significantly expand trial capacity for DMD in the UK, particularly in the north west of England. Read more

Tamoxifen clinical trial, co-funded by Duchenne UK, now recruiting in the UK

The Tamoxifen (TAMDMD) clinical trial is now recruiting at Alder Hey Children’s Hospital and Leeds Teaching Hospital Read more

Duchenne UK launch new competition to design dream wheelchair

We have teamed up with Whizz-Kidz to give young wheelchair users aged up to 25 in the UK the chance to design their dream wheelchair Read more

Dr. Dada Pisconti presents preliminary neutrophil elastase inhibitor data at 2019 MDA conference

We teamed up with Charley’s Fund to fund research into elastase inhibitors as a potential treatment for DMD Read more

Duchenne UK Attends the 12th UK Translational Research Conference for NMDs

Last week, our co-founders and research team attended The MRCs 12th UK Translational Research Conference for Neuromuscular Diseases. Read more

Sejal's EURORDIS Winter School blog

Sejal attended the EURORDIS Winter School to further develop her skills as a patient advocate. It's a one week face-to-face training course on Scientific Innovation and Translational Research. Read more

Duchenne UK invests £228,562 to address the use of testosterone as a treatment for Duchenne Muscular Dystrophy

Testosterone is given to patients who take steroids to help start puberty. Read more

Our boys are mascots for England Rugby at Six Nations

We are incredibly grateful to England Rugby and Owen Farrell for having the boys as mascots at Twickenham on Saturday, helping raise awareness for Duchenne Read more

An update from PPMD's advocacy conference and gene therapy policy forum

Our co-founders went to Washington DC to attend Parent Project Muscular Dystrophy's annual advocacy conference and gene therapy policy forum Read more

DMD Family Folder

The DMD Family folder to helps families to bridge the gaps in the coordination between medical, social and support services Read more