DMD INSPIRE 2019 Major Grant Call

As part of Duchenne UK's commitment to accelerate research, today we are proud to launch our largest ever grant call, for projects worth up to £2 million.Read more

Foodbuy extends charity partnership with Duchenne UK

Foodbuy has announced the extension of its charity partnership with Duchenne UK for a further two years. The last 12 months has seen Foodbuy raise an incredible £135,000 for Duchenne UK.Read more

Phase 2 of Project HERCULES

Duchenne UK are delighted to announce that eight industry partners are supporting Phase 2 of Project HERCULES in 2019 for this ground breaking global project to better demonstrate the real value of new treatments for DMD for HTA and reimbursement decisionsRead more

Duchenne UK Grants a further £780,000 to Tamoxifen Open Label Extension Study

Open Label Extension Study will give all patients on the TAMDMD trial access to Tamoxifen after completing trial. Total funding commitment to the TAMDMD trial now stands at £1.4million.Read more

Number of children on clinical trials doubles at Great Ormond Street Hospital, following funding through the DMD Hub

Duchenne UK is pleased to share a report from Great Ormond Street about the positive impact of the clinical staff posts we fund at the hospital.Read more


A whole month dedicated to raising awareness and funds for research into Duchenne Muscular Dystrophy. Each day on our DUCHENNEBER ADVENT CALENDAR we will feature news about research projects, new resources for the community, videos & podcasts.Read more

BREXIT: the impact on medical innovation and patients with Duchenne Muscular Dystrophy in the UK

This document highlights some of the major challenges Brexit poses to research and access to medicines for patients with DMDRead more

Duchenne UK’s Project HERCULES Awarded Prestigious Rare Disease Award

Duchenne UK’s Project HERCULES has been awarded the 2019 EURORDIS Black Pearl Award for Patient Engagement for outstanding commitment in the rare disease community.Read more

Duchenne UK grants £655,000 to Evox Therapeutics to investigate new ways of delivering gene therapy to patients

We will look at whether it is possible to deliver the dystrophin gene using exosomes rather than a virus.Read more

Jon Rey-Hastie reflects on Duchenne UK's Rugby Dinner

Jon Rey-Hastie, CEO of DMD Pathfinders reflects on our rugby fundraising dinner for the World's Strongest Boy: An evening with Jonny Wilkinson and Owen Farrell, which raised £400,000. Thank you to everyone who came and supported us.Read more

Duchenne UK attends the World Muscle Society 2018 Conference

David Bull, Duchenne UK’s Director of Research, attended the World Muscle Society (WMS) Congress 2018 on neuromuscular disorders in Mendoza, Argentina earlier this month.Read more