Project HERCULES in the media

We’re pleased to share the latest coverage of Hercules. The launch of the project, with our seven industry partners, has received coverage in 10 publications. HERCULES is collaboration between Duchenne UK, and pharmaceutical companies to increase the chances of patients with DMD of accessing innovative treatments.Read more

Marshall Wace names Duchenne UK as their charity of the year

Duchenne UK is delighted to have been chosen by Marshall Wace as their charity of the year and to be awarded a donation of $100,000. The donation from Marshall Wace will fund 10 boys with Duchenne on our Tamoxifen Trial.Read more

Pharmaceutical industry leaders join forces to pioneer novel approach to Health Technology Assessment

Pfizer, PTC Therapeutics International, Roche, Sarepta Therapeutics, Solid Biosciences, Summit, and Wave Life Sciences are sponsoring Project HERCULESRead more

DMD Hub First Year Round-up

The DMD-Hub was created by Duchenne UK and leading neuromuscular clinicians. The DMD-Hub is addressing the lack of capacity in the UK for clinical trials in DMD. During the first year of operation the DMD Hub has successfully achieved, even surpassed, the immediate priorities identified through the Newcastle Plan.Read more

Congratulations to Joining Jack for winning the Dubai 7's

We would like to congratulate the Joining Jack team for their recent victory! Joining Jack took a team to the Dubai 7's international rugby competition, and they came back champions! Alex Johnson, founder of Joining Jack and Jacks Mum, tells us more about Joining Jack's victory at the Dubai 7s.Read more

Duchenne UK are offering FREE copies of Janet Hoskin's DMD guide

Today, December 14th, marks the publication of Janet Hoskin's book: 'A Guide to Duchenne Muscular Dystrophy: Information and Advice for Teachers and Parents'. We are offering free copies to families affected by DMD, please contact us to request a copy.Read more

Duchenne UK round up of 2017

It has been a busy year at Duchenne UK. Our mission is to fund and accelerate treatments and find a cure for Duchenne muscular dystrophy. We look at where we can add value to the drug development pathway, and how we can help to accelerate research that will benefit the whole community.Read more

Santhera Pharmaceuticals, Summit Therapeutics, Catabasis Pharmaceuticals and Duchenne UK to host DMD Awareness Day

Our co-founder, Emily Crossley, is chairing a Duchenne Muscular Dystrophy Awareness Day. Speaking at the conference, will be some of the leading professionals in this field.Read more

Haelan 951 research has promising results

Duchenne UK commissioned Professor Steve Winder at Sheffield University to investigate a nutraceutical soy product, called Haelan 951. Haelan 951 has been popular with some DMD families as a perceived way of slowing down disease progression. Steve Winders poster summarises the results.Read more


Duchenneber is a twenty-four day campaign to raise awareness and funds for research into Duchenne, in collaboration with our new charity partner, Duchenne Now. This month we are going to be sharing updates from the community, updates on research projects, details of what we have been working on over the year, and some new announcements.Read more

Solid Biosciences Initiates Clinical Trial for Gene Transfer Candidate SGT-001 in Patients with Duchenne Muscular Dystrophy

Duchenne UK is delighted to share the news from Solid Biosciences that the company has announced the initiation of their first gene therapy clinical trial for Gene Transfer Candidate SGT-001Read more

Family and Friends Funds THANK YOU!

We know that the people who are most passionate about raising money to find treatments and a cure for Duchenne Muscular Dystrophy are those who live with it every day. We would like to say a huge thank you to all our Family and Friends Funds for their excellent fundraising efforts over 2017.Read more