Tamoxifen clinical trial, co-funded by Duchenne UK, now recruiting in the UK

The Tamoxifen (TAMDMD) clinical trial is now recruiting at Alder Hey Children’s Hospital and Leeds Teaching Hospital Read more

Duchenne UK launch new competition to design dream wheelchair

We have teamed up with Whizz-Kidz to give young wheelchair users aged up to 25 in the UK the chance to design their dream wheelchair Read more

Dr. Dada Pisconti presents preliminary neutrophil elastase inhibitor data at 2019 MDA conference

We teamed up with Charley’s Fund to fund research into elastase inhibitors as a potential treatment for DMD Read more

Duchenne UK Attends the 12th UK Translational Research Conference for NMDs

Last week, our co-founders and research team attended The MRCs 12th UK Translational Research Conference for Neuromuscular Diseases. Read more

Sejal's EURORDIS Winter School blog

Sejal attended the EURORDIS Winter School to further develop her skills as a patient advocate. It's a one week face-to-face training course on Scientific Innovation and Translational Research. Read more

Duchenne UK invests £228,562 to address the use of testosterone as a treatment for Duchenne Muscular Dystrophy

Testosterone is given to patients who take steroids to help start puberty. Read more

Our boys are mascots for England Rugby at Six Nations

We are incredibly grateful to England Rugby and Owen Farrell for having the boys as mascots at Twickenham on Saturday, helping raise awareness for Duchenne Read more

An update from PPMD's advocacy conference and gene therapy policy forum

Our co-founders went to Washington DC to attend Parent Project Muscular Dystrophy's annual advocacy conference and gene therapy policy forum Read more

DMD Family Folder

The DMD Family folder to helps families to bridge the gaps in the coordination between medical, social and support services Read more

Raxone and EAMS - a guide for the DMD community

We have produced guides for the DMD Community and for Clinicians to educate and answer questions on Raxone and the Early Access to Medicines Scheme process. Read more

17th International Conference on Duchenne and Becker Muscular Dystrophy

We attended the 17th International Conference on Duchenne and Becker muscular dystrophy in Rome. Read our summary here. Read more

Duchenne UK grants £20,000 to develop an adult Neuromuscular Complex Care Centre in the North East

Duchenne UK and Joining Jack will jointly commit £20,000 to help develop NMCCC NE. Read more