Our boys are mascots for England Rugby at Six Nations

We are incredibly grateful to England Rugby and Owen Farrell for having the boys as mascots at Twickenham on Saturday, helping raise awareness for DuchenneRead more

An update from PPMD's advocacy conference and gene therapy policy forum

Our co-founders went to Washington DC to attend Parent Project Muscular Dystrophy's annual advocacy conference and gene therapy policy forumRead more

Duchenne UK launch new resource for DMD Community

On Rare Disease Day, we launch the DMD Family folder to help DMD families to bridge the gaps in the coordination between medical, social and support servicesRead more

Raxone and EAMS - a guide for the DMD community

We have produced guides for the DMD Community and for Clinicians to educate and answer questions on Raxone and the Early Access to Medicines Scheme process.Read more

17th International Conference on Duchenne and Becker Muscular Dystrophy

We attended the 17th International Conference on Duchenne and Becker muscular dystrophy in Rome. Read our summary here.Read more

Duchenne UK grants £20,000 to develop an adult Neuromuscular Complex Care Centre in the North East

Duchenne UK and Joining Jack will jointly commit £20,000 to help develop NMCCC NE.Read more

An update on our survey and workshop to discuss the use of re-purposed or off label medicines

We hosted a workshop to discuss the survey on the use of re-purposed or off label medicinesRead more

DMD INSPIRE 2019 Major Grant Call

As part of Duchenne UK's commitment to accelerate research, today we are proud to launch our largest ever grant call, DMD INSPIRE 2019 MAJOR GRANT CALL for projects worth up to £2 million.Read more

Foodbuy extends charity partnership with Duchenne UK

Foodbuy has announced the extension of its charity partnership with Duchenne UK for a further two years. The last 12 months has seen Foodbuy raise an incredible £135,000 for Duchenne UK.Read more

Impact Report 2018

We are proud to share with you our first ever Impact Report, read about the very real impact we are having and the many things we have been working on over the past six years to end Duchenne.Read more

Duchenne UK awards £41,151 through the DMD Hub to Bristol Royal Hospital for Children, to help expand clinical trial capacity

Bristol Royal Hospital for Children is joining the DMD Hub as a Hub siteRead more

Phase 2 of Project HERCULES

Duchenne UK are delighted to announce that eight industry partners are supporting Phase 2 of Project HERCULES in 2019 for this ground breaking global project to better demonstrate the real value of new treatments for DMD for HTA and reimbursement decisionsRead more