Supporting the DMD community
We not only fund treatment development, but work with those affected by DMD to ensure they have access to the highest quality of care, and get the support and guidance they need.
We not only fund treatment development, but work with those affected by DMD to ensure they have access to the highest quality of care, and get the support and guidance they need.
We provide resources, information and support to families affected by DMD, and work with healthcare providers to ensure patients and families receive the highest quality care. We also invest in the latest technology to increase independence and improve quality of life.
Duchenne UK have announced a new grant to study the effects of hydrotherapy, or using water for health benefits, on boys and young men with DMD.
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Duchenne UK have launched a comprehensive new guide to support families of teenagers and young adults with Duchenne muscular dystrophy (DMD). The DMD Transitions Folder: Guide to Adolescence and Adulthood to help parents and families navigate their child’s changing needs as they grow up.
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The NHS has told all GPs to identify vulnerable 12 to 15-year-olds and their siblings so they can be offered vaccination before school starts in September. Duchenne UK is urging eligible families to contact their GP now so their children are included in the programme.
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We're excited to announce the launch of Duchenne UK's Minecraft Creative Build Competition for children and young people with Duchenne muscular dystrophy (DMD) and their siblings this August.
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There is a high risk of learning, behavioural and communication difficulties in Duchenne muscular dystrophy (DMD), as well as problems affecting well-being. As an adult living with DMD or a parent of an adult with DMD, would you be prepared to discuss any of these issues in a small-group online setting?
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A team of researchers and clinicians from Sheffield Hallam University, Sheffield Children’s NHS Foundation Trust and Leeds Teaching NHS Trust is developing an immersive virtual reality (VR) platform to help children living with Duchenne muscular dystrophy engage in physiotherapy exercises.
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The Joint Committee on Vaccination and Immunisation (JCVI) has updated their guidance to recommend that all 16 and 17-year-olds should be offered one dose of the Pfizer–BioNTech COVID-19 vaccination - the only vaccine currently approved for people under 18.
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We are continuing to partner with special educational needs (SEN) experts Decipha since 2017 to fund free educational support to families.
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Calling all parents of children/young people with Duchenne muscular dystrophy and adults with DMD - join our psycho-social care focus group and help inform the work of the DMD Care UK project to improve psycho-social care.
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If your loved one has DMD, access our resources and advice to support you from diagnosis to adulthood.
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We're breaking down barriers at every stage of drug development to bring treatments to patients.
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