DMD research, Duchenne UK news, Patient care & support
Duchenne UK, SMA UK and University of Liverpool win £1.25m award for revolutionary mobility suit, funded by players of People’s Postcode Lottery
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Patient care & support
World Muscle Society issues new COVID-19 guidance for people with neuromuscular diseases
The World Muscle Society has issued new advice on COVID-19 for people living with neuromuscular diseases such as DMD.
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Patient care & support
Duchenne UK launch In Case of Emergencies App
Duchenne UK has launched a new mobile app that could help to save DMD patients’ lives in medical emergencies.
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Patient care & support, Policy and campaigning
COVID-19 spring booster: what we know so far
This week, the Joint Committee on Vaccination and Immunisation (JCVI) recommended immunosuppressed people aged 12 and over get a ‘spring booster’ of the COVID-19 vaccine six months after their most recent dose.
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Patient care & support, Policy and campaigning
Everyone aged 5 and over with DMD eligible for vaccination
The JCVI has confirmed that people aged 5 and over with muscular dystrophy, or who receive high to moderate doses of corticosteroids, are eligible for vaccination against COVID. This includes children aged 5 and over whom they live with.
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Patient care & support
TREAT-NMD Statement on Stem Cell Tourism
Treat-NMD, the organisation that represents doctors and scientists working in neuromuscular disease, has released an important statement on stem cell tourism.
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Patient care & support
Duchenne Research Fund partners with Duchenne UK to transform DMD psychosocial care
The Duchenne Research Fund is awarding a £640,000 grant to fund vital psychosocial care and research as part of the nationwide DMD Care UK programme.
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Patient care & support
Duchenne UK CEO takes part in female carrier workshop
CEO Emily Crossley took part in a scientific workshop to try to understand more about being a carrier of the DMD gene, and help to address the unmet needs of this patient group.
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DMD research, Patient care & support
Duchenne UK funds hydrotherapy clinical trial for boys and young men with DMD
Duchenne UK have announced a new grant to study the effects of hydrotherapy, or using water for health benefits, on boys and young men with DMD.
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