Supporting the DMD community
We not only fund treatment development, but work with those affected by DMD to ensure they have access to the highest quality of care, and get the support and guidance they need.
We not only fund treatment development, but work with those affected by DMD to ensure they have access to the highest quality of care, and get the support and guidance they need.
We provide resources, information and support to families affected by DMD, and work with healthcare providers to ensure patients and families receive the highest quality care. We also invest in the latest technology to increase independence and improve quality of life.
Read More
The Joint Committee on Vaccination and Immunisation (JCVI) is now advising that children at increased risk of serious COVID-19 disease should be offered the Pfizer-BioNTech vaccine.
Read More
Calling all parents of children/young people with Duchenne muscular dystrophy and adults with DMD - join our psycho-social care focus group and help inform the work of the DMD Care UK project to improve psycho-social care.
Read More
DMD Care UK have launched the first comprehensive patient survey aiming to understand Duchenne muscular dystrophy (DMD) patients’ and caregivers’ experiences of medical care across the UK.
Read More
Duchenne UK is partnering with Pathfinders Neuromuscular Alliance to address the lack of choice and control over accessible housing for people with Duchenne muscular dystrophy and other muscle weakening conditions.
Read More
Neuromuscular experts have confirmed that the COVID-19 vaccines are safe, and are encouraging people over the age of 16 with DMD to take it as soon as possible.
Read More
The Government's Disability Unit is conducting a survey for disabled people and carers to help inform the National Strategy for Disabled People planned for Spring 2021.
Read More
We're pleased to announce the winners of our Minecraft creative build competition.
Read More
This webinar was about the UK recommended steroid stress dosing plans. There was also a demonstration of the hydrocortisone kit and the steps to giving an injection.
Read More
If your loved one has DMD, access our resources and advice to support you from diagnosis to adulthood.
Get support
We're breaking down barriers at every stage of drug development to bring treatments to patients.
Our access work
Find out about the research we fund to find the most effective treatments for DMD.
Our research
Sign up for the latest news on DMD research, upcoming events and ways to get involved.
