There is a lot of worry and confusion throughout our Duchenne community about the risks of coronavirus (COVID-19) for people with Duchenne muscular dystrophy.
We ran a series of webinars during the pandemic to help families understand the latest updates on COVID-19 as well as give guidance on DMD care and support, and share our latest research.
For the latest news on COVID-19 with relevant information for DMD, visit the World Duchenne COVID-19 Newsfeed.
We ran a series of webinars during the 2020 pandemic. These addressed the concerns that families had about COVID-19, as well as providing updates on DMD research, our projects, and information about caring for your child during the lockdown. You can watch the webinar recordings below.
This week, the Joint Committee on Vaccination and Immunisation (JCVI) recommended immunosuppressed people aged 12 and over get a ‘spring booster’ of the COVID-19 vaccine six months after their most recent dose.Read more
The JCVI has confirmed that people aged 5 and over with muscular dystrophy, or who receive high to moderate doses of corticosteroids, are eligible for vaccination against COVID. This includes children aged 5 and over whom they live with.Read more
Neuromuscular experts have confirmed that the COVID-19 vaccines are safe, and are encouraging people over the age of 16 with DMD to take it as soon as possible.Read more
Find out how to get the right educational support for your childSupport with education
Read our guide to preparing for emergencies when your child has DMDEmergency support
Attend our free Parent Information Day and meet others in the communityAbout Information Days