There is a lot of worry and confusion throughout our Duchenne community about the risks of coronavirus (COVID-19) for people with Duchenne muscular dystrophy.
We’re running a series of webinars during the pandemic to help families understand the latest updates on COVID-19 as well as give guidance on DMD care and support, and share our latest research.
For the latest news on COVID-19 with relevant information for DMD, visit the World Duchenne COVID-19 Newsfeed.
We ran a series of webinars during the 2020 pandemic. These addressed the concerns that families had about COVID-19, as well as providing updates on DMD research, our projects, and information about caring for your child during the lockdown. You can watch the webinar recordings below.
The NHS has told all GPs to identify vulnerable 12 to 15-year-olds and their siblings so they can be offered vaccination before school starts in September. Duchenne UK is urging eligible families to contact their GP now so their children are included in the programme.Read more
Neuromuscular experts have confirmed that the COVID-19 vaccines are safe, and are encouraging people over the age of 16 with DMD to take it as soon as possible.Read more
Duchenne UK wrote to NICE to express our concerns about publication of the NICE COVID-19 rapid guideline critical care. We are pleased to say that NICE has now updated the guidelines.Read more
We have been given this update from North Star clinicians to address the concerns of the community following the new COVID-19 lockdown and confusion regarding advice for extremely vulnerable. Please read this document.Read more
This is up to date advice specifically from clinicians, received on 29th April 2020. We will update the advice with further clinical guidance we receive.Read more
Decipha has continued to help support young people with DMD with their education needs during the COVID-19 pandemicRead more
Find out how to get the right educational support for your childSupport with education
Read our guide to preparing for emergencies when your child has DMDEmergency support
Attend our free Parent Information Day and meet others in the communityAbout Information Days