There is a lot of worry and confusion throughout our Duchenne community about the risks of coronavirus (COVID-19) for people with Duchenne muscular dystrophy.
We’re running a series of webinars during the pandemic to help families understand the latest updates on COVID-19 as well as give guidance on DMD care and support, and share our latest research.
For the latest news on COVID-19 with relevant information for DMD, visit the World Duchenne COVID-19 Newsfeed.
We ran a series of webinars during the 2020 pandemic. These addressed the concerns that families had about COVID-19, as well as providing updates on DMD research, our projects, and information about caring for your child during the lockdown. You can watch the webinar recordings below.
The JCVI has confirmed that people aged 5 and over with muscular dystrophy, or who receive high to moderate doses of corticosteroids, are eligible for vaccination against COVID. This includes children aged 5 and over whom they live with.Read more
Neuromuscular experts have confirmed that the COVID-19 vaccines are safe, and are encouraging people over the age of 16 with DMD to take it as soon as possible.Read more
Duchenne UK wrote to NICE to express our concerns about publication of the NICE COVID-19 rapid guideline critical care. We are pleased to say that NICE has now updated the guidelines.Read more
Find out how to get the right educational support for your childSupport with education
Read our guide to preparing for emergencies when your child has DMDEmergency support
Attend our free Parent Information Day and meet others in the communityAbout Information Days