DMD and the COVID-19 pandemic

There is a lot of worry and confusion throughout our Duchenne community about the risks of coronavirus (COVID-19) for people with Duchenne muscular dystrophy.

We ran a series of webinars during the pandemic to help families understand the latest updates on COVID-19 as well as give guidance on DMD care and support, and share our latest research.

For the latest news on COVID-19 with relevant information for DMD, visit the World Duchenne COVID-19 Newsfeed.

World Duchenne COVID newsfeed

Duchenne UK community webinar series

We ran a series of webinars during the 2020 pandemic. These addressed the concerns that families had about COVID-19, as well as providing updates on DMD research, our projects, and information about caring for your child during the lockdown. You can watch the webinar recordings below.

DMD Hub: Gene therapy - What you need to know

DMD Hub: What happens when clinical trials end

Vision-DMD: Top line results

New Year Lockdown webinar - 12 January 2021

Back to school with Decipha - 25 August 2020

Gene therapy and overcoming the challenges - 8 July 2020

DMD Hub and clinical trials update - 24 June 2020

Project HERCULES update - 4 June 2020

Lockdown and shielding - 20 May 2020

Advice on education with Decipha - 6 May 2020

Nutrition and DMD - 29 April 2020

Physiotherapy and exercise during lockdown - 23 April 2020

Facing coronavirus together - 21 April 2020

Advice on steroids and stress dosing - 8 April 2020

COVID-19 and Duchenne muscular dystrophy - 1 April 2020

COVID-19 and Duchenne muscular dystrophy - 25 March 2020

Latest COVID-19 guidance

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Patient care & support

COVID-19 spring booster: what we know so far

This week, the Joint Committee on Vaccination and Immunisation (JCVI) recommended immunosuppressed people aged 12 and over get a ‘spring booster’ of the COVID-19 vaccine six months after their most recent dose.

Patient care & support

Everyone aged 5 and over with DMD eligible for vaccination

The JCVI has confirmed that people aged 5 and over with muscular dystrophy, or who receive high to moderate doses of corticosteroids, are eligible for vaccination against COVID. This includes children aged 5 and over whom they live with.

Patient care & support

Latest statement by neuromuscular clinicians: COVID vaccines are safe

Neuromuscular experts have confirmed that the COVID-19 vaccines are safe, and are encouraging people over the age of 16 with DMD to take it as soon as possible.

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Our resources hub

Educational support

Find out how to get the right educational support for your child

Support with education

Prepare for emergencies

Read our guide to preparing for emergencies when your child has DMD

Emergency support

CEO Emily Crossley speaking at Duchenne UK Patient Information Day in 2019

Parent Information Days

Attend our free Parent Information Day and meet others in the community

About Information Days