DMD and the COVID-19 pandemic

There is a lot of worry and confusion throughout our Duchenne community about the risks of coronavirus (COVID-19) for people with Duchenne muscular dystrophy.

We’re running a series of webinars during the pandemic to help families understand the latest updates on COVID-19 as well as give guidance on DMD care and support, and share our latest research.

For the latest news on COVID-19 with relevant information for DMD, visit the World Duchenne COVID-19 Newsfeed.

World Duchenne COVID newsfeed

Duchenne UK community webinar series

We ran a series of webinars during the 2020 pandemic. These addressed the concerns that families had about COVID-19, as well as providing updates on DMD research, our projects, and information about caring for your child during the lockdown. You can watch the webinar recordings below.

Latest COVID-19 guidance

Patient care & support
Patient care & support

NHS to GPs: vaccinate vulnerable 12 to 15-year-olds before school starts

The NHS has told all GPs to identify vulnerable 12 to 15-year-olds and their siblings so they can be offered vaccination before school starts in September. Duchenne UK is urging eligible families to contact their GP now so their children are included in the programme.

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Patient care & support

Latest statement by neuromuscular clinicians: COVID vaccines are safe

Neuromuscular experts have confirmed that the COVID-19 vaccines are safe, and are encouraging people over the age of 16 with DMD to take it as soon as possible.

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Patient care & support

NICE COVID-19 rapid guideline: critical care

Duchenne UK wrote to NICE to express our concerns about publication of the NICE COVID-19 rapid guideline critical care. We are pleased to say that NICE has now updated the guidelines.

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Patient care & support
Patient care & support

Updated school/college guidance for children with DMD, Nov 2020

We have been given this update from North Star clinicians to address the concerns of the community following the new COVID-19 lockdown and confusion regarding advice for extremely vulnerable. Please read this document.

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Patient care & support

Updated clinical guidance on risks from coronavirus for people with DMD

This is up to date advice specifically from clinicians, received on 29th April 2020. We will update the advice with further clinical guidance we receive.

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Patient care & support

Duchenne UK continues to offer free educational support for children and young adults with DMD through Decipha

Decipha has continued to help support young people with DMD with their education needs during the COVID-19 pandemic

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Our resources hub

Educational support

Find out how to get the right educational support for your child

Support with education Support with education
Duchenne UK Steroid wristbands Duchenne UK Steroid wristbands

Prepare for emergencies

Read our guide to preparing for emergencies when your child has DMD

Emergency support Emergency support
CEO Emily Crossley speaking at Duchenne UK Patient Information Day in 2019 CEO Emily Crossley speaking at Duchenne UK Patient Information Day in 2019

Parent Information Days

Attend our free Parent Information Day and meet others in the community

About Information Days About Information Days