DMD Hub Impact Report 2020
We are pleased to share with you the DMD Hub Impact Report 2020.
The DMD Hub, funded by Duchenne UK, is a network of hospitals delivering clinical trials and facilitating access to treatments for the DMD community in the UK.
2020 has been an unbelievably challenging year. Yet in spite of COVID-19, the DMD HUB, one of Duchenne UK’s flagship collaborative programmes has been building on its success.
The DMD Hub has transformed the clinical trial landscape for DMD in the UK – providing a one stop shop for clinical trial support, and enabling more trials in the UK than ever before.
We’d like to take this moment to thank the incredible staff working in the NHS – every year, but in particular this year, and we hope you enjoy reading about how we are working with the NHS to help us deliver more ground breaking research to the UK.
Please do take a moment to see just how hard we’ve been working.
You can view it below, or download here.
To find out more, please visit DMDHUB.ORG
NOTES FOR EDITORS
What is Duchenne muscular dystrophy?
Duchenne muscular dystrophy (DMD) is the most common fatal genetic disease diagnosed in childhood. Children born with DMD cannot produce the protein dystrophin which is vital for muscle strength and function. Muscle weakness starts in early childhood. Many use a wheelchair by around the age of 12. As deterioration continues it leads to paralysis and early death, often in their 20s. It almost exclusively affects boys. There is no treatment or cure. In the UK there are around 2,500 boys affected and around 300, 000 worldwide. It is classified as a rare disease.
Who are Duchenne UK?
Duchenne UK has one clear aim – to end Duchenne, a devastating muscle-wasting disease. As the leading Duchenne charity in the UK, we connect the best researchers with industry, the NHS and families to challenge every stage of drug development to make the incurable, curable. Together, we will find treatments and cures for this generation of patients with Duchenne.
Our president is HRH The Duchess of Cornwall. Our patrons include the broadcasters Krishnan Guru-Murthy and Mary Nightingale, and the sports stars Owen Farrell, Kris Radlinski and Andy Farrell.
We need your help, because we need to keep funding promising new research.
How to donate?
Duchenne UK is entirely reliant on donations to fund research for treatments and a cure to DMD. This can be done via:
- Direct Debit – Duchenne Direct
- Individual Donation – Donate
- If you are a family or friend affected by DMD you can set up your own fund with Duchenne UK – Family and Friend Funds
- Take part in one of our fundraising events – Events
- Text DUCHENNE to 70085 to donate £5. This costs £5 plus a std rate msg.
For more information visit www.duchenneuk.org