Duchenne UK’s Parent Information Days focus on giving parents and caregivers updates on DMD research, clinical trials and caring for your child, to make sure you have the most up to date information. They also give you the opportunity to meet and connect with other parents and carers.
Our most recent Parent Information Day took place in March this year. People came from across the country to our Parent Information Day 2023 and there were presentations from a range of specialists – and the SMART Suit, recently seen on TV, was also on display.
You can download the presentations from previous Parent Information Days below.
People with DMD need special treatment in emergencies. Find out how you can be prepared.
Some children with DMD have associated learning difficulties. Find out how to get support with your child's education.