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Parent Information Days

Duchenne UK’s Parent Information Days focus on giving parents and caregivers updates on DMD research, clinical trials and caring for your child, to make sure you have the most up to date information. They also give you the opportunity to meet and connect with other parents and carers.

Regretfully, Duchenne UK’s Parent Information Day that was scheduled to take place in London on Saturday 1st October has been postponed to a later date (to be announced) due to planned rail strikes. We have been notified of the rail strikes by ASLEF and RMT on 1st October affecting transport links into London.

We will be in touch with those who registered to confirm a new date as soon as possible in the coming weeks. If you have booked your rail travel, you should be able to request a refund via the rail operator due to the strike.

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Thank you to Franke, whose funding has made Duchenne UK’s Parent Information Day possible

Parent Information Days resources

You can download the presentations from previous Parent Information Days below.

What parents say

"Thank you again for holding an amazing, informative day. Being in a room with people been through/going through the same thing is so empowering and uplifting."

"Warm, friendly, intellectual, informative, empowering and comforting. You are all amazing, Thank you!"

"Very helpful to network and exchange experiences and where to look for relevant info and support"

Our resources

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COVID-19 and DMD guidance

Many in the DMD community are concerned about coronavirus. Get the latest guidance from neuromuscular experts.