Parent Information Days

Our Parent Information Days (formerly Patient Information Days) focus on giving parents and caregivers updates on DMD research, clinical trials and caring for your child, to make sure you have the most up to date information. They also give you the opportunity to meet and connect with other parents and carers.

The next Parent Information Date will take place on 2 October 2021.

Sign up for our Information Day

Parent Information Days resources

You can download the presentations from previous Parent Information Days below.

Our resources

Duchenne UK Steroid wristbands Duchenne UK Steroid wristbands

Prepare for emergencies with DMD

People with DMD need special treatment in emergencies. Find out how you can be prepared.

Emergency resources Emergency resources

Help with your child's education

Some children with DMD have associated learning difficulties. Find out how to get support with your child's education.

Support with education Support with education
Nurse preparing vaccine Nurse preparing vaccine

COVID-19 and DMD guidance

Many in the DMD community are concerned about coronavirus. Get the latest guidance from neuromuscular experts.

Pandemic guidance Pandemic guidance