fbpx

Parent Information Days

Duchenne UK’s Parent Information Days focus on giving parents and caregivers updates on DMD research, clinical trials and caring for your child, to make sure you have the most up to date information. They also give you the opportunity to meet and connect with other parents and carers.

The next Parent Information Day will take place Saturday 4 March 2023 at the Holiday Inn Bloomsbury, London. Download a draft agenda to find out more.

This event was previously scheduled for 1 October 2022, but was postponed due to rail strikes. Please note, if you previously registered for this event, you will need to re-register to confirm your place. 

Franke logo

Thank you to Franke, whose funding has made Duchenne UK’s Parent Information Day possible

Parent Information Days resources

You can download the presentations from previous Parent Information Days below.

What parents say

"Thank you again for holding an amazing, informative day. Being in a room with people been through/going through the same thing is so empowering and uplifting."

"Warm, friendly, intellectual, informative, empowering and comforting. You are all amazing, Thank you!"

"Very helpful to network and exchange experiences and where to look for relevant info and support"

Our resources

Duchenne UK Steroid wristbands Duchenne UK Steroid wristbands

Prepare for emergencies with DMD

People with DMD need special treatment in emergencies. Find out how you can be prepared.

Help with your child's education

Some children with DMD have associated learning difficulties. Find out how to get support with your child's education.

Nurse preparing vaccine Nurse preparing vaccine

COVID-19 and DMD guidance

Many in the DMD community are concerned about coronavirus. Get the latest guidance from neuromuscular experts.