Parent Information Days

Duchenne UK’s Parent Information Days focus on giving parents and caregivers updates on DMD research, clinical trials and caring for your child, to make sure you have the most up to date information. They also give you the opportunity to meet and connect with other parents and carers.

Our most recent Parent Information Day took place in March this year. People came from across the country to our Parent Information Day 2023 and there were presentations from a range of specialists – and the SMART Suit, recently seen on TV, was also on display. 


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Thank you to Franke, whose funding has made Duchenne UK’s Parent Information Day possible

Parent Information Days resources

You can download the presentations from previous Parent Information Days below.

What parents say

"Thank you again for holding an amazing, informative day. Being in a room with people been through/going through the same thing is so empowering and uplifting."

"Warm, friendly, intellectual, informative, empowering and comforting. You are all amazing, Thank you!"

"Very helpful to network and exchange experiences and where to look for relevant info and support"

Our resources

Duchenne UK Steroid wristbands Duchenne UK Steroid wristbands

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COVID-19 and DMD guidance

Many in the DMD community are concerned about coronavirus. Get the latest guidance from neuromuscular experts.