Duchenne UK’s Parent Information Days focus on giving parents and caregivers updates on DMD research, clinical trials and caring for your child, to make sure you have the most up to date information. They also give you the opportunity to meet and connect with other parents and carers.
Regretfully, Duchenne UK’s Parent Information Day that was scheduled to take place in London on Saturday 1st October has been postponed to a later date (to be announced) due to planned rail strikes. We have been notified of the rail strikes by ASLEF and RMT on 1st October affecting transport links into London.
We will be in touch with those who registered to confirm a new date as soon as possible in the coming weeks. If you have booked your rail travel, you should be able to request a refund via the rail operator due to the strike.
You can download the presentations from previous Parent Information Days below.
People with DMD need special treatment in emergencies. Find out how you can be prepared.
Some children with DMD have associated learning difficulties. Find out how to get support with your child's education.