Duchenne UK Charity Film

Thank you for watching. For further information please read OUR IMPACT.

We would like to thank all those who helped us to create this film.

Latest

Andy Haycock

Andy Haycock
Sarepta Therapeutics Announcement: Positive Preliminary Results from the First Three Children Dosed in the Phase 1/2a Gene Therapy Micro-dystrophin Trial

Sarepta announced that at the Company’s R&D Day, Jerry Mendell, M.D. of Nationwide Children’s Hospital presented positive preliminary results from its Phase 1/2a gene therapy clinical trial
Advocacy around the world!

At the beginning of May, Lisa Kuhwald attended the Duchenne Caregivers’ Masterclass in Madrid on behalf of Duchenne UK.
Jack Wills supports Duchenne UK

We are delighted to announce our charity partnership with British fashion and lifestyle brand, Jack Wills. To launch the partnership, Jack Wills is hosting their own in-store Duchenne Dash TOMORROW, Friday 1st of June. 10 Jack Wills stores and two Head Office teams will compete against each other to cycle 300km (the distance to Paris) on stationary bikes.

Duchenne Dash 2018

London to Paris in 24 hours, by bike! Please contact us to register interest for 2018 [email protected]
Meet The Team

Our co-founders Alex Johnson and Emily Crossley met after their sons were diagnosed with Duchenne muscular dystrophy. They both set up charities, Alex with Joining Jack, Emily with the Duchenne Children’s Trust.
Understand Duchenne

Find out more about DMD and how we can help you
The Impact Of Brexit On Rare Diseases

Please read and share our paper on the impact of Brexit on rare diseases.
Welcome To Duchenne UK

Duchenne Children's Trust and Joining Jack have joined forces to create Duchenne UK, dedicated to funding and accelerating treatments for Duchenne Muscular Dystrophy.
How You Can Help

Join Us to End Duchenne
Girls living with Duchenne

Duchenne affects approximately 1 in every 3,500 boys that are born but only around 1 in every 50 million girls. It may be rare, but it does happen. We have been speaking to Feriel, a 26 year old woman living with Duchenne muscular dystrophy. She has written us a short blog about her experiences with Duchenne from diagnosis to now.
What Are The Stages Of Duchenne?
Diet

A healthy diet is vital for patients with DMD, especially foods high in Vitamin D and calcium
Duchenne Direct

Duchenne Direct is a monthly Direct Debit from you to Duchenne UK, that is spent DIRECTLY on research. 100% of your donations will be ring-fenced and will go directly into our exciting research projects. By becoming a Duchenne Direct supporter today, you can help us End Duchenne.