Duchenne UK Charity Film

Thank you for watching. For further information please read OUR IMPACT.

We would like to thank all those who helped us to create this film.

Latest

Archie's March

In our darkest moments we chose to not let Duchenne define either Archie or our family but instead to start fund raising and join the fight to end it.
Patient Perspectives in DMD

We are doing some interviews on how Duchenne muscular dystrophy affects people and their lives, and, in particular, what aspects are most important in determining a good quality of life in people with DMD. The study will involve taking part in an interview with a researcher from the University of Sheffield.
Archies March

In our darkest moments we chose to not let Duchenne define either Archie or our family but instead to start fund raising and join the fight to end it. With hope and huge, huge thanks, Beccy, Alex, Archie and Freddie
Cheshire Dash raises over £112,000 for Duchenne UK

The Cheshire Dash took place in July, it is a 2-day challenge where 90 cyclist rode 200 miles across the beautiful Cheshire countryside AND raised over £112,000 for Duchenne UK. The event was organised by the Cheshire Flyers on behalf of Transforming Lives Charity. The Duchenne Dash spin off event will help us End Duchenne.

Duchenne Dash 2019

London to Paris in 24 hours, by bike! Please contact us to register interest for 2019 [email protected]
Meet The Team

Our co-founders Alex Johnson and Emily Crossley met after their sons were diagnosed with Duchenne muscular dystrophy. They both set up charities, Alex with Joining Jack, Emily with the Duchenne Children’s Trust.
Understand Duchenne

Find out more about DMD and how we can help you
The Impact Of Brexit On Rare Diseases

Please read and share our paper on the impact of Brexit on rare diseases.
Welcome To Duchenne UK

Duchenne Children's Trust and Joining Jack have joined forces to create Duchenne UK, dedicated to funding and accelerating treatments for Duchenne Muscular Dystrophy.
Girls living with Duchenne

Duchenne affects approximately 1 in every 3,500 boys that are born but only around 1 in every 50 million girls. It may be rare, but it does happen. We have been speaking to Feriel, a 26 year old woman living with Duchenne muscular dystrophy. She has written us a short blog about her experiences with Duchenne from diagnosis to now.
How You Can Help

Join Us to End Duchenne
What Are The Stages Of Duchenne?
Gene Therapy Overview

An exciting new gene-based therapy on the horizon
Diet

A healthy diet is vital for patients with DMD, especially foods high in Vitamin D and calcium