20th May 2020

This week, our webinar took the format of a community discussion about lockdown and shielding.

We covered the following topics:

• Unplanned hospital admissions
• Telehealth
• Shielding & schooling
• Siblings
• Sharing positives!

Our cofounders Alex Johnson & Emily Crossley were joined by Dr Chiara Marini-Bettolo (Consultant Neurologist, Newcastle University) and Panelists from the DMD community: Jo Eames, Nick Catlin, Phillippa Farrant, Lisa Kuhwald, Peter Duffy.

Thank you all for your really useful input!

Watch the recording below:

Useful resources

• www.duchenneuk.org/virtual-health-appointments

• Emergency website duchenneemergency.co.uk
• Family guide https://bit.ly/dmdfamilyguide
• Government website www.gov.uk/coronavirus
• NHS website https://www.nhs.uk/conditions/coronavirus-covid-19/
• My Cortisol App for advice on using your hydrocortisone pack
• WDO website https://www.worldduchenne.org/news/live-covid-19-coronavirus-and-duchenne-becker-muscular-dystrophy/

We will be hosting regular webinars, watch them all here. Please follow the Duchenne UK Facebook page, or check back here for more information.