Duchenne UK Community Webinar: Facing Coronavirus Together: Tapping into the Resilience of the Rare Disease Community
Wednesday 22nd April 2020
This is the recording of the webinar we held on Tuesday 21st April at 12.30pm. We partnered with another rare disease charity, Metabolic Support UK, to host this webinar addressing an issue common to us both: how to psychologically manage in lockdown.
We spoke with leading clinical psychologists to share their top tips for helping parents, carers and children through lockdown.
Useful resources mentioned:
- Kings College have produced a series of evidence-based videos including advice on differentiating covid symptoms from other symptoms and difficulty sleeping https://www.kcl.ac.uk/ioppn/maintaining-health-and-wellbeing-during-the-covid-19-pandemic?fbclid=IwAR3yfW-bxFb7k1yiryWvdCnklBZqCdxibG-y9B0eWsBYi331W_72z9qXTUo#.Xox5vQXr2W0.facebook
- The British Psychological Society have published advice about the impact of covid-19 for children and vulnerable adults https://www.bps.org.uk/responding-coronavirus
- Mind have information about mental health during the covid pandemic https://www.mind.org.uk/coronavirus-we-are-here-for-you/ and relaxation techniques you can try https://www.mind.org.uk/information-support/tips-for-everyday-living/relaxation/relaxation-exercises/ Their website also has useful information about what to do if you are concerned about your own or someone else’s mental health
- Headspace are offering free guided meditations on their website for ‘weathering the storm’, including helping with sleep https://www.headspace.com/covid-19
Please email us with any questions [email protected]
EXTRA WEBINAR THIS WEEK: Lots of you have asked us for advice on physiotherapy during lockdown. So we’re holding an EXTRA webinar THIS THURSDAY 23rd APRIL at 2pm on "Physiotherapy and exercise during lockdown"
Register here: https://zoom.us/webinar/register/WN_6J84QP-hQ_2_i0v7dvHMsw