Duchenne UK hosts first Patient Information Day

We've been working extremely hard at Duchenne UK to fund and accelerate the search for treatments for Duchenne Muscular Dystrophy.

Last month we invited patients and caregivers to a free information day at Alder Hey Children's Hospital, to share with them some of the trials we've funded, update them on the work we are doing, and to give advice and information about how to access research and clinical trials of potential treatments for Duchenne Muscular Dystrophy.

The sessions were focussed on what clinical trials are coming up in the UK in the next 12 months, and how patients can access them. We've created a presentation with all this information on it which you can VIEW HERE.

There were also updates on care and supporting the learning and education of children and adults living with Duchenne Muscular dystrophy..

It was wonderful for us to see so many of our community gather together and support the event. We were delighted with the feedback from the day, which you can read here by CLICKING HERE..

Following the success of this event, we will host another FREE information day in February 2018 in London. We'll be announcing the date and details of how you can register in the next few weeks.

Duchenne UK is entirely reliant on donations to fund and accelerate the search for treatments for DMD

Please help us and donate today:

  • Direct Debit – Duchenne Direct
  • Individual Donation – Donate
  • If you are a family or friend affected by DMD you can set up your own fund with Duchenne UK – Family and Friend Funds
  • Take part in one of our fundraising events – Events
  • Text DUCH10 £10 to 70070

Published on 8 March 2017

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