Duchenne UK news

Duchenne UK receives £10,000 donation from BGC and GFI Charity Day

12th November 2020

Every year on September 11th BGC and GFI Partners remember their 719 colleagues who lost their lives on September 11th, 2001 by donating all of the global revenues from that day to charities from around the world.

We have recently received a £10,000 donation from BGC and GFI from their 2019 fundraising day.

Duchenne UK is honoured to be one of the chosen charities. We have taken part in the events at both the BGC and GFI London offices for the past 4 years. 

Charities and their celebrity patrons take part in the trades by speaking with clients over the phone and all the profits made go to charity.

We would like to thank BGC and GFI for their very generous donations, supporting us in our mission to END DUCHENNE.

Here are some photos from previous years with our patrons Krishnan Guru-Murthy and Owen Farrell. We would also like to thank Martin Offiah, Richard Wrigglesworth, Sarah Alexander and Peter Serafinowicz for their involvement with Duchenne UK at the events.




What is Duchenne Muscular Dystrophy?

Duchenne muscular dystrophy (DMD) is the most common fatal genetic disease diagnosed in childhood. Children born with DMD cannot produce the protein dystrophin which is vital for muscle strength and function. Muscle weakness starts in early childhood. Many use a wheelchair by around the age of 12. As deterioration continues it leads to paralysis and early death, often in their 20s. It almost exclusively affects boys. There is no treatment or cure. In the UK there are around 2,500 boys affected and around 300, 000 worldwide. It is classified as a rare disease.

Who are Duchenne UK?

Duchenne UK has one clear aim – to end Duchenne, a devastating muscle-wasting disease. As the leading Duchenne charity in the UK, we connect the best researchers with industry, the NHS and families to challenge every stage of drug development to make the incurable, curable. Together, we will find treatments and cures for this generation of patients with Duchenne.

Our president is HRH The Duchess of Cornwall. Our patrons include the broadcasters Krishnan Guru-Murthy and Mary Nightingale, and the sports stars Owen Farrell, Kris Radlinski and Andy Farrell. 

We need your help, because we need to keep funding promising new research.

How to donate?

Duchenne UK is entirely reliant on donations to fund research for treatments and a cure to DMD. This can be done via:

  • Direct Debit – Duchenne Direct
  • Individual Donation – Donate
  • If you are a family or friend affected by DMD you can set up your own fund with Duchenne UK – Family and Friend Funds
  • Take part in one of our fundraising events – Events
  • Text DUCHENNE to 70085 to donate £5. This costs £5 plus a std rate msg.

For more information visit www.duchenneuk.org

Published on 11 November 2020

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