Duchenne UK news

Duchenne UK supporters invited to celebrate Captain Sir Tom's achievements in special fundraising event

6 April 2021


Following the outpouring of heartfelt messages since the death of Captain Sir Tom Moore on 2 February, his family pledged to celebrate his life with an event that everyone, in the UK and around the world, could be involved in. That event is the Captain Tom 100 and Duchenne UK is proud to be inviting our supporters to take part.

Duchenne UK, like many other charities, has been hugely impacted by the Covid-19 pandemic. It’s had a catastrophic effect, with the cancellation of thousands of fundraising events and the loss of billions in income in the charity sector.

Captain Tom 100 offers Duchenne UK supporters, of all ages and abilities, the opportunity to raise crucial funds for our work, while at the same time celebrating Captain Tom’s generosity of spirit, the hope and joy he brought to millions, and his sense of fun.

How it works

It’s so simple. All participants need to do is dream up a Captain Tom 100 challenge based around the number 100 and do it at any time and anywhere over Captain Tom’s birthday weekend – starting on Friday 30 April through to Bank Holiday Monday 3 May.

The challenge could be walking 100 steps or running 100 metres, scoring 100 goals, baking 100 cakes, climbing 100 stairs, hopping 100 laps of the garden, building 100 sandcastles, writing a 100-word poem, flipping 100 pancakes – anything at all, inside or out.

Once supporters have chosen their challenge, they can fundraise or donate to Duchenne UK, and share their 100 on social media, using #CaptainTom100

Captain Tom’s daughter, Hannah Ingram-Moore, said: “We are so grateful for the incredible support we have received since my father started his record-breaking fundraising walk and that his message of hope was shared with the world. Captain Tom was very proud to be able to leave behind the growing legacy of his Foundation. We know he would love the idea of inviting everyone to get involved and share their Captain Tom 100 so that together we can ensure ‘Tomorrow will be a good day’. We look forward to celebrating with you on what would have been his 101st birthday weekend – it’s going to be fun!”

Emily Crossley, CEO of Duchenne UK, said: “This has been a tough year for everyone, and those affected by Duchenne muscular dystrophy need our support more than ever. We couldn’t continue to fund life-changing research without your help, so are thankful to Captain Tom’s family for this new initiative. We hope it inspires our supporters to challenge themselves in their own way; together, we can end Duchenne.”

Find out more at CaptainTom100.com or visit Duchenne UK’s fundraising page to set up your own fundraiser.

Published on 6 April 2021

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Note for editors

Captain Tom 100 and The Captain Tom Foundation

Friday 30 April 2021 would have been Captain Sir Tom Moore’s 101st birthday and the one-year anniversary of the extraordinary celebrations following the conclusion of his famous 100 laps of his garden that raised an incredible £38.9 million for the NHS. Captain Tom’s simple message of hope – “Tomorrow will be a good day” – resonated around the globe during some of the darkest days of the pandemic, bringing light and comfort to millions worldwide.

The Captain Tom Foundation was created with Tom to ensure his message of hope becomes an enduring legacy. Captain Tom’s walk and words inspired millions around the world, motivating everyone from five-year-old schoolchildren to war veterans in Russia, Canada and Africa. So, in addition to supporting its key causes, The Foundation hopes to inspire a new generation of Captain Toms. Captain Tom 100 is organised by The Captain Tom Foundation with London Marathon Events and supported by the Mass Participation Sport Organisers group, adam&eveDDB, LiveWire Sport and Studio Republic (all working pro bono). The website supporting the campaign is CaptainTom100.com

Who are Duchenne UK?

Duchenne Muscular Dystrophy (DMD) is a devastating muscle-wasting disease. It is the most common and severe form of Muscular Dystrophy. Diagnosed in childhood, it mainly affects boys. There is currently no cure. Started by families affected by the disease, Duchenne UK has one clear aim – to end Duchenne.

Duchenne UK are funding research that’s focused on getting treatments to those affected now – as well as pushing for an effective treatment in the future.

Duchenne UK connects leading researchers with industry, the NHS and patients to challenge every stage of drug development, from research to clinical trials to drug approval. They connect families with each other to create a network of mutual support and to pool resources, knowledge and experience.