Welcome to Duchenneber 2017!


December 01

Today we are launching Duchenneber: a twenty-four day campaign to raise awareness and funds for research into Duchenne Muscular Dystrophy, in collaboration with our new charity partner, Duchenne Now. To celebrate us coming together for the common cause of accelerating the search for treatments, we want the world to hear about our incredible sons, daughters, children, teenagers and adults, all bravely fighting Duchenne Muscular Dystrophy. And pay tribute to their incredible families. Building on the success of Duchenne World Awareness Day, we want to dedicate this month to spreading the word about Duchenne Muscular Dystrophy, the ways in which the research landscape has changed, and what we are doing to help accelerate the search for treatments and a cure. We are entering exciting clinical times for this disease. Now more than ever, we need to raise the profile and awareness of Duchenne Muscular Dystrophy. Do please visit this website every day to see what’s new. Please SHARE Duchenneber – we want to get it out there. And if you have ideas of how we can improve Duchenneber for next year then do please let us know. This month we are going to be sharing updates from the community, updates on research projects, details of what we have been working on over the year, and some new announcements. Thank you to everyone who has joined us in our fight to End Duchenne. Together we are stronger. Together we will make history.

Published on 12 January 2017

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