Emergency app for DMD

For some time it has been a priority for boys with DMD and their families to have easy access to their medical records, so that if an A and E visit is needed, doctors know exactly what to do.

Thanks to a generous and timely grant from the QBE foundation, this vital facility - The Duchenne Accident & Emergency File (UK) - has now been launched. At first families will use it though visiting and registering on this address: http://duchenneemergency.co.uk/

Soon however this will be available as an app so that boys, carers and parents can access it easily at all times through their tablets and phones.

It is really important that families keep this information up-to-date and that it is checked after every consultation.

All the charities below helped with the creation of this new servce. The grant was secured by the Duchenne Children's Trust.

Action Duchenne

Alex’s Wish

DMD Pathfinders

Duchenne Now

Duchenne Research Fund

Harrison’s Fund

Joining Jack


TREAT-NMD Neuromuscular Network (Treat NMD EU)


Published on 3 March 2016

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