What We Do About Us Patient Advisory Board Alex Clarke Alex and his wife Lisa have 2 boys, Ben 6 and Zak 2. They live in Sonning Common in Berkshire. Ben, who has Duchenne, was diagnosed in 2017 soon after his 4th Birthday when Zak was only 4 months old. Alex has spent more than 20 years creating and managing high performing teams in the service industry in a number of countries and across a range of sectors including hospitality, retail and guest services in the corporate world. Since diagnosis, Alex has reduced his working contract and invested time in supporting Duchenne Charities through fundraising and raising awareness on social media through the Unincorporated Charity, Ben vs Duchenne on Instagram, Facebook and Twitter, where he shares Ben's life experiences both medical and social. Alex and Ben vs Duchenne will be setting up a family fund to support Duchenne UK's investment into research.