Emily is the co-founder and CEO of Duchenne UK.

She graduated from Oxford University with a degree in modern history and became a reporter and anchor for Channel 4 News and CNN International. After her eldest son was diagnosed with Duchenne muscular dystrophy, she set up the Duchenne Children’s Trust. The charity joined forces with Joining Jack and is now Duchenne UK. Since 2012 they have spent more than £17million on funding and accelerating the search for treatments and a cure for DMD, and set up groundbreaking and award winning collaborations like Project HERCULES and the DMD Hub. Emily has advocated on behalf of patients around the world in meetings at the EMA, the MHRA, the FDA and NICE. She was praised in the House of Commons for the charity’s work, by the then Minister for Life Sciences, George Freeman MP. She is a member of the MHRA patient group consultative forum, and sits on the Steering Group for the Patient Organisation Forum at the Association of British Pharmaceutical Industries (ABPI). In 2017, Emily and her co-founder Alex, were awarded a Points of Light award by the Prime Minister for their passionate work.