There are more and more clinical trials happening now for DMD. The decision to put your child forward to take part in research project or clinical trial, is a very personal one and should be discussed fully with your doctor.

Register your child on both the Action Duchenne Registry and PPMD’s Duchenne Connect registry.

Your doctor is unlikely to know about every single trial being conducted in DMD right now.

The best place to search for current trials for DMD is the International Clinical Trials Registry Platform, run by the World Health Organisation, It will tell you what trials are currently ongoing or about to start for Duchenne muscular dystrophy.

Find out more on our Clinical Trial Support page.