Jo Eames is mother to William & Phoebe and wife to Matt. William was diagnosed with Duchenne in January 2016 just over the age of 3. The family set up their unincorporated charity Defending William Against Duchenne in 2018 to raise awareness of DMD and William’s journey. In 2019 they raised over £50,000 and Jo project managed the huge adaptations to totally futureproof their house to make it the most wonderful home with no obstacles for William. Jo now offers advice on adaptations to other parents in similar situations.

Jo has been involved with Duchenne charities since William’s diagnosis, serving as a trustee of Action Duchenne for 18 months earlier in their journey. With the support of family and friends they have raised over £30,000 specifically for research across several charities. The families focus is now research into gene therapy to find a cure for Duchenne.

Jo works as a consultant within education part time so that she can be a mother to both children whilst also overseeing William’s health, care and wellbeing.