Because DMD is a rare disease, it’s likely that your GP will not have had a patient with DMD before. You may need to help them to understand what your child needs. 

We recommend that you tell them about the Royal College of General Practitioners’ e-learning course on neuromuscular conditions in primary care. It will help them to better understand DMD and care for your child.

If your GP thinks your child may have DMD, they will refer them to a neuromusclar consultant. 

If you don't have a neuromuscular consultant, ask your GP to refer you to a neuromuscular clinic that is part of the North Star Network

The Network helps clinics provide the best possible treatments to DMD patients.  

Your GP can also help you to access local services for you and your child, including physiotherapy and, if you would like, counselling. 

Two important things GPs can help with are:

1. Vaccinations - ask your GP to check that your child's vaccinations are up-to-date. They will need to receive the flu and chickenpox vaccinations, as well as all recommended childhood vaccines. These will protect them from preventable illnesses which would put an extra strain on their body. 

2. Regular Breathing test - people with DMD need to have one at least once a year. This is because DMD affects all muscles, including the muscles needed for breathing.