We know that it can be difficult to talk to others about DMD, particularly when you are still trying to come to terms with the diagnosis yourself.

We have created a series of guides as resources for the Duchenne community to help talk to others about DMD:

We’re aware of the financial implications of having a child with DMD. So, our final guide is:

The guide goes in to detail about the various ways you are able to get financial support and what you are entitled to.

We hope you will find it useful to share the guides with your family and close friends to support your through your Duchenne diagnosis.

We hope you can also to share the relevant guides with your child's teachers and your employer to help you have productive conversations about this difficult situation.

To help support the Duchenne community, and in particular newly diagnosed families, we also have the DMD Family Folder: www.duchenneuk.org/dmd-family-folder.

Please get in touch if you need support: [email protected]