Duchenne is the most severe of the Muscular Dystrophies - progressive muscle wasting disorders affecting boys. I wish I'd never had to know that!
When we learned that Eli had been diagnosed with Duchenne, it was impossible to believe that this smiling, happy, lively little boy was destined to be in a wheelchair by the age of 12, and likely to die so prematurely.
Please watch the video put together by his parents, our friends, Emily and Nick 4 years ago. They founded the Duchenne Children's Trust in 2012, and this year, came together with Joining Jack to form Duchenne UK. If, like me, you feel that we really can 'End Duchenne in 10' by raising the money for clinical trials, then please sponsor me as generously as you can to run the British London 10k. (training is well under way in this activity which is not my natural forte!)
All of us who have healthy boys must be so grateful Duchenne is not our son's story. Please donate for Eli.
Published on 26 May 2016Share this article Categories Uncategorised