Duchenne UK news

Read our new impact report

1st January 2021

It’s with relief that we welcome 2021, and with it, hopes for a brighter future.

Despite the challenges of 2020, Duchenne UK has achieved much and we hope you find the impact report that we are releasing today, uplifting. We believe in the life changing power of science, and as we saw with the discovery of vaccines, breakthroughs can and do happen.

Thanks to your support, Duchenne UK is so much more than a charity. We are a highly specialised and motivated research and development catalyser, using our knowledge and experience as patients, combined with our networks and funds – to accelerate research & bring treatments to patients. We are a driving force within the ecosystem of research and development in the UK. We know what patients need because we are the patients – living this disease on the front line.

And we are turning that lived experience into life changing science. Together we will get there.

Thank you for your support and we wish you a safe and bright 2021.

To view our 2020 Impact Report, download here.

Published on 23 December 2020

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Note for editors

What is Duchenne muscular dystrophy?

Duchenne muscular dystrophy (DMD) is the most common fatal genetic disease diagnosed in childhood. Children born with DMD cannot produce the protein dystrophin which is vital for muscle strength and function. Muscle weakness starts in early childhood. Many use a wheelchair by around the age of 12. As deterioration continues it leads to paralysis and early death, often in their 20s. It almost exclusively affects boys. There is no treatment or cure. In the UK there are around 2,500 boys affected and around 300, 000 worldwide. It is classified as a rare disease.

Who are Duchenne UK?

Duchenne UK has one clear aim – to end Duchenne, a devastating muscle-wasting disease. As the leading Duchenne charity in the UK, we connect the best researchers with industry, the NHS and families to challenge every stage of drug development to make the incurable, curable. Together, we will find treatments and cures for this generation of patients with Duchenne.

Our president is HRH The Duchess of Cornwall. Our patrons include the broadcasters Krishnan Guru-Murthy and Mary Nightingale, and the sports stars Owen Farrell, Kris Radlinski and Andy Farrell. 

We need your help, because we need to keep funding promising new research.

How to donate?

Duchenne UK is entirely reliant on donations to fund research for treatments and a cure to DMD. This can be done via:

Direct Debit – Duchenne Direct
Individual Donation – Donate
If you are a family or friend affected by DMD you can set up your own fund with Duchenne UK – Family and Friend Funds
Take part in one of our fundraising events – Events
Text DUCHENNE to 70085 to donate £5. This costs £5 plus a std rate msg.

For more information visit www.duchenneuk.org