Late Ambulatory

Children at this stage will still be able to move around by themselves, but it will become increasingly difficult. As the thigh muscles weaken further, walking becomes harder. Children's balance may be affected, which may lead to a change in posture. They may walk on the balls of their feet or their toes more than other children.  Walking will become harder and boys may tire more quickly. Climbing up and down stairs will become harder.


 - walking aids: mobility scooters, walkers, or a lightweight wheelchair for longer distances

 - night splints

 - cortico-steroids and supplements

 - regular echocardiogram tests for the heart

 - heart medication (ace inhibitors, beta blockers)

 - regular lung function tests (including the Forced Vital Capacity measurement and peak flow)

 - non-prescribed supplements

 - exercise - discuss with clinical staff how it is best to exercise

 - physiotherapy and stretching

 - schools - consider which will support your needs best

 - application for a statement of educational needs

 - clinical trials - often the best access point for the newest drugs

 - wheelchair, lift and stairlift funding for the home and at school

 - application for advice and grants to adapt the home

 - blue badge disability parking permit application

 - consider DEXA scans to monitor bone strength

 - cough assist machine (if required)

Published on 29 April 2016

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