This time last year me and my partner received the devastating news that our happy little boy has Duchenne Muscular Dystrophy.
This is a condition where the body produces little or no Dystrophin which acts like a shock absorber for the muscles. Without Dystrophin Muscle damage occurs regularly. The muscle repairs itself with scar tissue but over time muscle gets weaker.
In general, a steady decline in muscle strength between the ages of 6 and 11 is expected and by 12 years many children are confined to a wheelchair. By their late teens most young people with Duchenne lose the ability to move their arms and experience more problems with breathing and with the heart.
Time is short and I am doing my bit to raise funds to help assist research into this horrible condition which will hopefully one day find a cure.
Not only for our son but for all the other boys,some girls and adults that have this condition and have even less time than Lincoln.
Published on 15 November 2017Share this articleCategories Uncategorised