Duchenne UK news

New £250,000 grant call for projects to support people with DMD as they enter adulthood and adult care

Entering adulthood is a key stage in anyone’s life but can be more complicated when you have Duchenne muscular dystrophy (DMD). We want people with DMD to have excellent care as they move from paediatric to adult services, and to be supported and enabled to take advantage of the opportunities becoming an adult offers them.

DMD Care UK entering adulthood working group

DMD Care UK is a national project run by Duchenne UK and the John Walton Muscular Dystrophy Research Centre in Newcastle that is improving and harmonising standards of care for all people living with DMD across the UK. 

Co-funded with Joining Jack, Alex’s Wish and Duchenne Research Fund, the project has established an entering adulthood working group to develop guidelines for smooth transfer of clinical care and to help support young people with DMD as they become adults.

We are offering a grant of up to £250,000 to fund projects that will be run as part of DMD Care UK, and invite proposals from North Star centres that will work with the working group on creating these guidelines.

Aims of working group

The aims of the successful proposal/s should include:

1. Development of practical guidelines, models of good practice and support for all clinical centres in the UK on how to deliver effective, coordinated services as patients enter adulthood.

2. Proposal of models that can support all patients and families, beyond the clinical setting as people living with DMD enter adulthood.

All proposals should demonstrate how they will have impact across all areas of the UK.

Applying for the grant

Submissions can be made by using this project submission template and emailing it to [email protected] by 5pm on 12 June 2024.

Published on 30 April 2024

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