In May 2020, Duchenne UK provided an update to this project, read here.

December 2017

Last year, Duchenne UK commissioned Professor Steve Winder at Sheffield University to investigate a nutraceutical soy product, called Haelan 951.

Haelan 951 has been popular with some DMD families as a perceived way of slowing down disease progression. It has a very unpleasant taste and is expensive. It has never been tested in clinical trials, and the only evidence for its effectiveness is anecdotal.

Prof. Steve Winder carried out a study in mice which looked at the various properties in Haelan 951. He then divided them up into different diets, and compared them to each other and to a placebo group.

The results clearly showed that one of the diets had a significant and positive effect on the mice.

Duchenne UK has now asked Professor Winder to validate and extend these findings in a new set of experiments. We will keep you updated with his progress.

Steve winder has produced a poster summarising the findings of this study which you can read here.