Attend our FREE Information Days

Please join us at our free Patient Information Day Read more

Decipha: patient and parent stories

Decipha work face to face with families and offer a range of assessments and valuable support to boys with DMD and their families. Read more

Emergency Care

A new app allows those with Duchenne to carry their medical information with them on their phone or tablet. Read more

DMD Pathfinders

Campaign for treatments for Adults with DMD Read more

Updated Care Consideration Guidelines and Family Guide for Duchenne

The new Care Considerations for Duchenne have been published Read more


We partnered with Whizz-Kidz and the University of Edinburgh to win £1 million from the People’s Postcode Lottery Dream Fund to develop a dream chair for wheelchair users. Read this update from WhizzKidz Read more

Duchenne UK are offering FREE copies of Janet Hoskin's DMD guide

We are offering families affected by DMD FREE copies of Janet's book. Get in touch to request one. Read more

DMD Pathfinders: pushing for DMD treatments for all ages

Jon Hastie shares DMD Pathfinders work to promote research and treatments for adults living with DMD. Read more


Your RoadMap for Life Read more