Patient care & support

Parent Information Day

We were delighted to welcome dozens of families to our latest Parent Information Day in London this weekend.

We are so grateful for all those who came. People came from across the country – one Duchenne researcher came from Boston in the United States!


There were presentations from a range of specialists – and the SMART Suit, recently seen on TV, was also on display.

Ioan Tereco and Saul Catlin were both able to give it a go.


Much of the focus on the day was on DMD Care UK – our initiative to ensure the best possible care for our community across the country.

Our community 

Our Chief Executive Emily Reuben spoke about what we have achieved together over the last ten years, and that we truly believe that we can end Duchenne.

Published on 6 March 2023

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