Our Parent Information Day is back!

 Saturday 2nd October 2021

We’re delighted to say that after a Covid-enforced break, we are now planning our next, in person, Parent Information Day in Manchester.


Please save the date for Saturday 2nd October. The event will run from 9am to 5pm, and there will be drinks and a chance to meet people afterwards.

This event is FREE for parents. Please note, we do not provide childcare: this is a support event for parents only.

PLEASE SIGN UP HERE TO SECURE YOUR PLACE. Spaces are limited so please let us know if you are no longer able to attend.

Address: The Studio, The Hive, 51 Lever St, Manchester M1 1FN

 

The drinks reception will be held at the: Pie & Ale, Units 1 & 2 the Hive, 47 Lever St, Manchester M1 1FN (2 minute walk from the venue). 

 

Please note, this is an event for parents only. If you have any queries please email us.

 

We look forward to seeing you!

 


NOTES

What is Duchenne Muscular Dystrophy?

Duchenne Muscular Dystrophy is the most common fatal genetic disease diagnosed in childhood. Children born with DMD cannot produce the protein dystrophin which is vital for muscle strength and function. Muscle weakness starts in early childhood. Many use a wheelchair by around the age of 12. As deterioration continues it leads to paralysis and early death, often in their 20s. It almost exclusively affects boys. There is no treatment or cure. In the UK there are around 2,500 boys affected and around 300, 000 worldwide. It is classified as a rare disease.

Who are Duchenne UK?

Duchenne UK is a lean, ambitious and highly focused charity with a clear vision: to fund and accelerate treatments and a cure for Duchenne muscular dystrophy. The charity has been formed by the coming together of Joining Jack and Duchenne Children's Trust, the two biggest funders of research in the UK in the last three years. Its president is HRH The Duchess of Cornwall. Its patrons include the broadcasters Krishnan Guru-Murthy and Mary Nightingale, and the sports stars Owen Farrell, Kris Radlinski and Andy Farrell. 

How to donate?

Duchenne UK is entirely reliant on donations to fund research for treatments and a cure to DMD. This can be done via:

  • Direct Debit – Duchenne Direct
  • Individual Donation – Donate
  • If you are a family or friend affected by DMD you can set up your own fund with Duchenne UK – Family and Friend Funds
  • Take part in one of our fundraising events – Events
  • Text DUCHENNE to 70085 to donate £5. This costs £5 plus a std rate msg.

For more information visit www.duchenneuk.org