Psychosocial project for DMD patients and families now underway
There is an increased risk of mental health, emotional and behavioural needs in Duchenne muscular dystrophy (DMD), and the diagnosis affects the whole family. Despite this, DMD Care UK’s family survey in 2021 found that psychosocial support was one of the most significantly lacking areas of care.
Thanks to funding from the Duchenne Research Fund and Joining Jack, two psychiatrists and two clinical psychologists are now in post. These posts will conduct research to increase our understanding of psychosocial care needs. They will work with colleagues to agree a UK-wide standard of care and referral pathway so that ALL patients with DMD receive the best care, no matter where they live. They will also be able to offer direct support to some DMD patients and families.
To find out more about the service and how patients can be referred to a psychologist or psychiatrist, visit the DMD Care UK website.