Our happy, cheeky little boy, Ralphy was diagnosed with Duchenne Muscular Dystrophy in August 2018 and our world collapsed, we are heartbroken and devastated.
Duchenne Muscular Dystrophy (DMD) is one of the most serious genetic diseases worldwide. It is a rare muscle wasting disease that usually affects boys, the body is unable to produce the protein dystrophin that causes progressive muscle damage which is life limiting.
Instantly the hopes and dreams you have for your child and their future is dashed, it hit the family from nowhere, there is no history of the disease and none of us have ever encountered DMD.
We waited a few months before telling friends and extended family, mainly so we were strong enough to answer questions about Ralphy’s condition when asked. We broke the news at the beginning of November 2018 and the support we have received has been humbling and overwhelming.
There is currently no cure for DMD, current treatment with steroids which delays the progression of the disease comes with side effects. In the few months since we received the news the future is looking brighter and the cure is getting closer. There has been ground breaking research announced and with it hope for the future for Ralphy and other boys like him.
Now we are ready as a family to raise funds towards a cure for Duchenne Muscular Dystrophy, we have set ourselves a target to raise awareness and as much money as we can to help fund research to find a cure for this cruel disease and to eliminate DMD.
Thanks for reading about Team Ralphy, we are looking to the future you can help us with fundraising and donations which will all go to fund research to eliminate DMD you can donate to Team Ralphy here.