Duchenne UK news

Duchenne UK hosts second Minecraft creative build competition for young people with DMD and their siblings

30th December 2020

In November, Duchenne UK held a Minecraft creative build competition for young people with Duchenne and their siblings. The task was to build a festive winter holiday scene! We are delighted to announce Marcus age 11 as the 11-16s winner and Jensen age 7 as the under 10s competition winner. We are extremely grateful to the Bluewater Giving Tree for providing wonderful gifts for all those who took part. 

Marcus said:

I am so happy, it was nice to take part, but to win is just brilliant. Thank you Duchenne UK.

Jensen said:

Yay! I'm really happy, thank you, I enjoyed building Santa's sleigh for the competition!

View Jensen’s build here: 

 

In 2nd place for the 11-16s was George age 12, he said:

Wow! I’m so pleased to be chosen as one of the winners. I spent a lot of time designing my festive house and I enjoyed it a lot. This has made my day. Thank you! P.S. Did you count how many Christmas trees you could spot in my house?!

View George's build here:

 

In 2nd place for the under 10s was Henry age 6, he said:

I am really happy and even more happy that I beat my sister

 

In 3rd place for 11-16s was Blake age 11. Cal (age 7) & Taylor (age 5) came in 3rd place for the under 10s.

Well done and a big thank you to everyone that took part!


NOTES FOR EDITORS

What is Duchenne Muscular Dystrophy?

Duchenne muscular dystrophy (DMD) is the most common fatal genetic disease diagnosed in childhood. Children born with DMD cannot produce the protein dystrophin which is vital for muscle strength and function. Muscle weakness starts in early childhood. Many use a wheelchair by around the age of 12. As deterioration continues it leads to paralysis and early death, often in their 20s. It almost exclusively affects boys. There is no treatment or cure. In the UK there are around 2,500 boys affected and around 300, 000 worldwide. It is classified as a rare disease.

Who are Duchenne UK?

Duchenne UK has one clear aim – to end Duchenne, a devastating muscle-wasting disease. As the leading Duchenne charity in the UK, we connect the best researchers with industry, the NHS and families to challenge every stage of drug development to make the incurable, curable. Together, we will find treatments and cures for this generation of patients with Duchenne.

Our president is HRH The Duchess of Cornwall. Our patrons include the broadcasters Krishnan Guru-Murthy and Mary Nightingale, and the sports stars Owen Farrell, Kris Radlinski and Andy Farrell. 

We need your help, because we need to keep funding promising new research.

How to donate?

Duchenne UK is entirely reliant on donations to fund research for treatments and a cure to DMD. This can be done via:

  • Direct Debit – Duchenne Direct
  • Individual Donation – Donate
  • If you are a family or friend affected by DMD you can set up your own fund with Duchenne UK – Family and Friend Funds
  • Take part in one of our fundraising events – Events
  • Text DUCHENNE to 70085 to donate £5. This costs £5 plus a std rate msg.

For more information visit www.duchenneuk.org

Published on 30 December 2020

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Categories Duchenne UK news Patient care & support