Duchenne UK was founded by DMD parents, so we know how tough it is to hear this news. We’ve produced a set of resources that we hope will help you cope and plan your child's care.
Our family folder for newly diagnosed families includes information about DMD and how you can look after your child, your family and yourself. It will help you protect their health, manage their education and make the most of life.
You may have already received a folder from your neuromuscular consultant. If not, each family in the UK can request a printed copy of the folder below. You can also download a PDF of each chapter below.
People with DMD need special treatment in emergencies. Find out how you can be prepared.Emergency support
Attend a Parent Information Day to find out about the latest research and connect with other parents.Attend an Information Day
Many in the DMD community are concerned about coronavirus. Read the latest guidance from neuromuscular experts.Support in the pandemic