Support when your child is diagnosed with DMD
Duchenne UK was founded by DMD parents, so we know how tough it is to hear this news. We’ve produced a set of resources that we hope will help you cope and plan your child's care.
Duchenne UK was founded by DMD parents, so we know how tough it is to hear this news. We’ve produced a set of resources that we hope will help you cope and plan your child's care.
Our folder for newly diagnosed families includes information about DMD and how you can look after your child, your family and yourself. It will help you protect their health, manage their education and make the most of life.
You can request a free printed copy of the folder using the form below. You can also download a digital copy of each chapter below.
Please note that we can only post within the UK.
UPDATE: We are awaiting delivery of Newly Diagnosed Folders at the present time. We will send out your copy as soon as new stock is received.
In the meantime, you can download a digital copy from the ‘Download Family Folder Chapters’ dropdown below this form. Thank you for your patience.
Duchenne UK was founded by two mothers whose sons were diagnosed with DMD in 2011. They understand the pain and heartbreak that a DMD diagnosis brings, and are here for other families going through the same experience.
Emily and Alex have written a letter to newly diagnosed parents and families, which we hope will bring you comfort and strength at this difficult time.
Learn more about DMD, its causes, symptoms and stages and available treatments.
What is DMD
People with DMD need special treatment in emergencies. Find out how you can be prepared.
Attend a Parent Information Day to find out about the latest research and connect with other parents.
Attend an Information Day